Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long And How Much Gluten Needed For Gi Test?


sisterlynr

Recommended Posts

sisterlynr Explorer

I have a diagnosis of DH and Lupus but none of my doctors agree as to what is causing 'the rash'. One biopsy indicated a pointer to Lupus and none of the 8 biopsies showed DH although only 2 were done properly for DH.

 

I am scheduled to meet a new GI in December and hopefully she will combine a Colonoscopy and EGD procedure, the same day.  I will ask the GI to biopsy via EGD and maybe that will settle the Celiac DH issue.

 

 I have not been lesion free since Feb 2012 although I have been gluten-free since Oct 2012.  I have had minor relief but then all symptoms renew.  I'm on mega histamine blockers so that is helping me keep my sanity.

 

If the procedures are scheduled in mid December, when should I add gluten back to my diet?  How much should I intake?  

 

Thanks for any information.  I'm sure someone has been in this same situation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

See page 2, the last paragraph in the right column.

Open Original Shared Link

 

In other words..... you're already too late to start glutening yourself.

sisterlynr Explorer

See page 2, the last paragraph in the right column.

Open Original Shared Link

 

In other words..... you're already too late to start glutening yourself.

 

:(   Well . . . I will discuss this with the GI and see what goes.  I had a polyp removed and my esophagus stretched in 2010 so this isn't an elective procedure.  My iron is low again and my PCP is adamant that I have both procedures.

 

Thanks for pointing me to the information.  

kareng Grand Master

I doubt they will decide to do a colonoscopy at a doctor appt. with all the prep you have to do. You should have time to gluten up.

Open Original Shared Link

However, if you are diagnosed with DH that is an automatic diagnosis of Celiac.

Open Original Shared Link

Open Original Shared Link

sisterlynr Explorer

I doubt they will decide to do a colonoscopy at a doctor appt. with all the prep you have to do. You should have time to gluten up.

Open Original Shared Link

However, if you are diagnosed with DH that is an automatic diagnosis of Celiac.

Open Original Shared Link

Open Original Shared Link

 

 

 

I have had colon issues for years and family hx (1 uncle 3 aunts deceased) with colon cancer.  Cousins with Celiac per biopsy.  I have had a colonoscopy every other year since I was in my 30's.  One year I had 3 colonoscopies and one that year included the EGD at the same time.  They were always looking for cancer but only found red patches of inflammation.  

 

I was scheduled for a colonoscopy and EGD this summer but the GI wanted to do separate procedures and my co-pay would be over $500.00, which I do not have. . . on my limited disability income.  Since he wouldn't do as I asked, I cancelled the appointment.

 

I am going to see a GI that will do both procedures at the same time.  They will schedule the procedures on my first visit, due to my history and I have my med recs to give her.  The prep is worse than the procedure, in my opinion.

 

 I have had 3 EGD's that I remember and was never told I had Celiac.  One was because the GI said my stomach was way too tender and thought it was cancer.  One was to check the duct after gallbladder removal, thinking I had developed another stone.  The stone finally passed as they saw the damage to the duct, this one resulted in Pancreatitis which was horrid and lasted several months.  The other EGD was in 2010 and although I asked the GI to biopsy for Celiac, he failed to do so. . . I wasn't very happy when I woke up.  He did stretch my esophagus during the procedure.

 

Will see what December holds for me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,847
    • Most Online (within 30 mins)
      7,748

    rossick11
    Newest Member
    rossick11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.