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Are These Symptoms?


Mokey41

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Mokey41 Newbie

Just wondering if anyone can help me confirm my symptoms.  I've been lactose intolerant for over 30 years so a lot of these things over lap but I'm pretty careful with dairy most of the time.

 

I've had urge incontinence for a couple years along with some minor digestive issues off and on ie:  flatulence, loose stools, bloating.  I lived with it because the meds they wanted to give me for the incontinence sounded horrid with side effects.  In September I had some dental work and took penicillin for 10 days.  By the end of the 10 days I was experiencing horrible abdominal cramps, diarrhea with a lot of mucus and generally feeling miserable.  I thought it might be the antibiotics messing me up so I started taking probiotics which seemed to help a bit.

 

A couple weeks later I started getting a sharp pain in my lower right side that would progress to all the way across my abdomen with lots of mucusy, fluffy? pale bowel movements.  Sometimes it would just be a lot of gas and mucus. 

 

At that point I went to see my doctor who told me all the types of cancer I could have, sent me off to the lab for bloodwork, gave me a colon cancer test kit and said he would schedule a CT scan (which hasn't happened yet).  I came home still miserable, in pain and confused.

 

The pains would come and go and it started radiating into my back as well.  I went to an Italian dinner and had pasta, had a pancake the next morning for breakfast then went out for lunch and had a whole wheat clubhouse sandwich.  By late afternoon I was rolled in a ball hoping I'd die soon.  That's when it hit me that I'd eaten a lot of wheat products and maybe there was some relation.

 

I immediately stopped eating anything with gluten and it's only been five days but I feel about 75% better.  I'm having fewer BM's, the mucus is less, the urge incontinency has almost gone, there's minimal cramping but I still have this pain in my side and back.  It's subsiding to not be the hot poker pain it was but it's still there and flares up.  Funny thing is I have no pain when I'm sleeping!

 

Does any of this sound like what you all experience?  I'm going to head back to the doctors but I'd like some ammunition when I go so he doesn't blow me off as that crazy woman dreaming things up.  I'm sure if I don't have cancer he's going to be disappointed.


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1desperateladysaved Proficient

I suggest you be tested for celiac disease, but it could false negative if you are not eating gluten.  Yes, many have dairy intolerance, bloating, and bowel problems.  I saw bloating for 30 years.  I was told it was all in my head or weight gain!  I hope you will soon have a definitive diagnosis and be on the road to recovery,

 

D

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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