Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms?


Mokey41

Recommended Posts

Mokey41 Newbie

Just wondering if anyone can help me confirm my symptoms.  I've been lactose intolerant for over 30 years so a lot of these things over lap but I'm pretty careful with dairy most of the time.

 

I've had urge incontinence for a couple years along with some minor digestive issues off and on ie:  flatulence, loose stools, bloating.  I lived with it because the meds they wanted to give me for the incontinence sounded horrid with side effects.  In September I had some dental work and took penicillin for 10 days.  By the end of the 10 days I was experiencing horrible abdominal cramps, diarrhea with a lot of mucus and generally feeling miserable.  I thought it might be the antibiotics messing me up so I started taking probiotics which seemed to help a bit.

 

A couple weeks later I started getting a sharp pain in my lower right side that would progress to all the way across my abdomen with lots of mucusy, fluffy? pale bowel movements.  Sometimes it would just be a lot of gas and mucus. 

 

At that point I went to see my doctor who told me all the types of cancer I could have, sent me off to the lab for bloodwork, gave me a colon cancer test kit and said he would schedule a CT scan (which hasn't happened yet).  I came home still miserable, in pain and confused.

 

The pains would come and go and it started radiating into my back as well.  I went to an Italian dinner and had pasta, had a pancake the next morning for breakfast then went out for lunch and had a whole wheat clubhouse sandwich.  By late afternoon I was rolled in a ball hoping I'd die soon.  That's when it hit me that I'd eaten a lot of wheat products and maybe there was some relation.

 

I immediately stopped eating anything with gluten and it's only been five days but I feel about 75% better.  I'm having fewer BM's, the mucus is less, the urge incontinency has almost gone, there's minimal cramping but I still have this pain in my side and back.  It's subsiding to not be the hot poker pain it was but it's still there and flares up.  Funny thing is I have no pain when I'm sleeping!

 

Does any of this sound like what you all experience?  I'm going to head back to the doctors but I'd like some ammunition when I go so he doesn't blow me off as that crazy woman dreaming things up.  I'm sure if I don't have cancer he's going to be disappointed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I suggest you be tested for celiac disease, but it could false negative if you are not eating gluten.  Yes, many have dairy intolerance, bloating, and bowel problems.  I saw bloating for 30 years.  I was told it was all in my head or weight gain!  I hope you will soon have a definitive diagnosis and be on the road to recovery,

 

D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748

    sleuth
    Newest Member
    sleuth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.