Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms?


Mokey41

Recommended Posts

Mokey41 Newbie

Just wondering if anyone can help me confirm my symptoms.  I've been lactose intolerant for over 30 years so a lot of these things over lap but I'm pretty careful with dairy most of the time.

 

I've had urge incontinence for a couple years along with some minor digestive issues off and on ie:  flatulence, loose stools, bloating.  I lived with it because the meds they wanted to give me for the incontinence sounded horrid with side effects.  In September I had some dental work and took penicillin for 10 days.  By the end of the 10 days I was experiencing horrible abdominal cramps, diarrhea with a lot of mucus and generally feeling miserable.  I thought it might be the antibiotics messing me up so I started taking probiotics which seemed to help a bit.

 

A couple weeks later I started getting a sharp pain in my lower right side that would progress to all the way across my abdomen with lots of mucusy, fluffy? pale bowel movements.  Sometimes it would just be a lot of gas and mucus. 

 

At that point I went to see my doctor who told me all the types of cancer I could have, sent me off to the lab for bloodwork, gave me a colon cancer test kit and said he would schedule a CT scan (which hasn't happened yet).  I came home still miserable, in pain and confused.

 

The pains would come and go and it started radiating into my back as well.  I went to an Italian dinner and had pasta, had a pancake the next morning for breakfast then went out for lunch and had a whole wheat clubhouse sandwich.  By late afternoon I was rolled in a ball hoping I'd die soon.  That's when it hit me that I'd eaten a lot of wheat products and maybe there was some relation.

 

I immediately stopped eating anything with gluten and it's only been five days but I feel about 75% better.  I'm having fewer BM's, the mucus is less, the urge incontinency has almost gone, there's minimal cramping but I still have this pain in my side and back.  It's subsiding to not be the hot poker pain it was but it's still there and flares up.  Funny thing is I have no pain when I'm sleeping!

 

Does any of this sound like what you all experience?  I'm going to head back to the doctors but I'd like some ammunition when I go so he doesn't blow me off as that crazy woman dreaming things up.  I'm sure if I don't have cancer he's going to be disappointed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I suggest you be tested for celiac disease, but it could false negative if you are not eating gluten.  Yes, many have dairy intolerance, bloating, and bowel problems.  I saw bloating for 30 years.  I was told it was all in my head or weight gain!  I hope you will soon have a definitive diagnosis and be on the road to recovery,

 

D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...