Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

GDLions

Recommended Posts

GDLions Rookie

My son has been diagnosed with Celiac and he is getting glutened.  Best I can tell, it is coming from his 1st grade classroom at school.  Everyone is aware of his Celiac, there are doctors notes/diagnosis on file, we have met with the teachers, nurse and principal but there no 504 in place.

 

Here is the problem, I believe.  The students eat snacks everyday in class.  They do this while sitting in the front of the class on the floor, they are allowed to walk around eating, and to snack through out the day whenever they need.  According to the teacher about 90% of the students have gluten snacks.  There is one student who carries crackers with her most of the day setting them down on shared tables and leaving crumbs behind.  The students rotate through out the day to different tables, all of which have had someone eating gluten at them at some point during the day, without being cleaned. 

 

We take every precaution with my son's snack and hygiene in the classroom.  He brings his own food, he eats at his desk, he lays a paper towel down to place his snack on, he washes his hands before he touches his food, he always brings his lunch and his lunchroom hygiene is very good as well. 

 

I think he is getting glutened from all of the crumbs and snacks laying around the classroom.  Have any of you had any issues with this or dealt with the teachers/administration regarding classroom snacking problems?

 

Thanks for any advice you have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lisalamitie Newbie

I have never heard of a classroom where the kids can eat all day long and carry food around with them. Sounds very distracting. How are they doing their work if they are eating all day long? Is this just in this classroom or is that permitted through out the school? If its just that classroom Id ask to switch teachers. If its a school rule then Id meet with principal and explain how this could be harmful to your son and others with different allergies. Perhaps you can be the voice of change.

mom2aaeande Newbie

I'm new to the diagnosis (just received the definitive results on Dec 4th) and we aren't gluten-free quite yet.  Slowly transitioning and trying to get everyone on board.  But this is what worries me the most.  My child is in preschool.  So I will be following this thread closely.

GDLions Rookie

I'm new to the diagnosis (just received the definitive results on Dec 4th) and we aren't gluten-free quite yet.  Slowly transitioning and trying to get everyone on board.  But this is what worries me the most.  My child is in preschool.  So I will be following this thread closely.

I have two boys with Celiac...1st grade and pre-school.  We were just diagnosed in July of this year.  My younger son was much easier to deal with in the classroom, I think in part because his class was much smaller (6 kids vs. 26).  He had the same issues with snacks and getting glutened.  We had all children wash their hands when they got to school, during snack/lunch time each child had to sit at the table to eat in the same spot each time, wash their hands when they were done, and the tables were all cleaned after the children were finished.   This seemed to take care of the problem for my youngest.   His teacher has been amazing, checking with me before she uses ANYTHING in class that might contain gluten and being super vigilant about keeping cross contamination down.  We were hoping it wasn't going to be as big of a problem in 1st grade....we were wrong.  Getting a classroom of 26 kids is a bit harder to change than 6 pre-schoolers.  They have a whole science curriculum that centers around meal worms...who live in some kind of gluten food/bedding.  It is all over the classroom.  I felt bad telling them they couldn't do it, so we tried it and I think we made it through that one okay, but this snack thing is another story.  The teacher already seems a bit overwhelmed with various other things in class and trying to educate several teachers, nurses and other staff is a bit daunting.  I am sure we will both figure it out, it just can be overwhelming at times!!!!    

dilettantesteph Collaborator

It is really hard to protect your child from other peoples food while at the same time making things as normal as possible.  You need to work with the teacher to figure it out.  My son sometimes has to work at his own desk space a bit away from all the food.  Sometimes he will ask people sitting near him to wait until later to eat.  It really depends on individual circumstances.  

 

Often we realize that it is something in his diet and not the school situation that is making him sick.

StephanieL Enthusiast

Why do they walk around all day with food? That just sounds strange on so many levels.

We have a no food in the classroom policy for my DS. He has other allergies as well. They had snacks in K but not this year. They had the kids go out into the hall at a little table 3-4 at a time to have snack and they washed hands when they came back into the class. The entire class washes when they come in in the morning and after lunch/recess.

Iis there a reason they don't want to give you a 504? I would really push for one as it can be critical going forward (and I hear for college they are actually really important!).

Hugs. It's hard to protect them from things others don't see as a danger.

deb445 Rookie

My little guy (now grade 2) has had a rough go of it at school too. Glutened at least once a month. September alone had him sick 3 times. We seem to be doing ok now - 3 months symptom free! And this in a classroom that does candy rewards. (Don't get me started). He has had to become a bigger advocate for himself, (easier when they get older) and washes his hands several times a day. He is motivated :)  Norwex cloths are also great for packing in snack bags, and wicking away potential contaminants. (...and no, I'm not a distrubutor). This is the longest he has gone without getting sick at school EVER. (...and now I'm knocking on wood). 

 

I can attest to success with the cloths and frequent hand washing.

 

Best of luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.