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Houston, Tx Doctor?

rduchess

By rduchess
in Doctors

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rduchess Newbie
rduchess
Posted

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 

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LauraTX Rising Star
LauraTX
Posted

My doctor is in the Dallas/Fort worth area, but I can call them next week and see if they know any practices in the Houston area.  The University of Chicago center has a new doctor database but not many doctors had been added last time I looked at it.  Also, if there is a GIG-Gluten Intolerance Group chapter in that area, you can see who they go to as well.  Good luck! :)

  • 3 weeks later...
Kath Urbahn Newbie
Kath Urbahn
Posted

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 

My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.  

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      how much gluten do I need to eat before blood tests?

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