Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroparesis...so They Say.


stacyrubel

Recommended Posts

stacyrubel Newbie

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I do not have gastroparesis, but I think that there have been a few others who have posted in the past. Try doing a search within this forum.

It is hard waiting for test results. Assuming your doctor took plenty so samples during your endoscopy, you could start the gluten free diet or enjoy gluten until you get the results ( that is what I did since my only known symptom was anemia). If you do have celiac disease, it can really slow down your digestion (or speed it up), so the gastroparesis could easily be related to celiac disease.

Juliebove Rising Star

I have gastroparesis.  I do not have celiac or even wheat or gluten issues.  But...  I do have mulitple food intolerances and if I eat eggs, dairy or some other things, I can get the big D.  I don't usually have headaches but I do occasionally have lethargy.

 

When my gastroparesis is the worst, I will usually just start to feel off.  My stomach won't necessarily hurt or feel sick.  It just won't feel right.  Then usually I will feel saliva backing up.  And I need to grab the pukey bowl and then head to the toilet.  I will begin to vomit but if it is really bad, it will come out the other end as well, often at the same time.  In that case, my stomach will hurt and very badly.  I can see it having violent spasms.  Oddly enough if I am not feeling right and I lie down in bed, that will get the ball rolling.  And of course it usually strikes me around the time that I need to go to bed.  I will try to stay up just in case but exhaustion will overtake me.  Then by morning I will be exhausted from all of the violent vomiting.

 

Following an episode, I mainly just eat plain white rice and perhaps a little applesauce.  I used to have chicken broth until I learned of my chicken intolerance.

 

From what I have read, Celiac can cause gastroparesis.  So it is possible.  But the most common cause is diabetes.

nvsmom Community Regular

I know that my gut is slow to empty but I assumed it was due to hypothyroidism and celiac disease.  

 

When I was pg, I could vomit meals that I had eaten 24 hours earlier, and I can fast for a few days and still have bowel movements... I'm like a camel with food. LOL

 

As the others said, I have seen that as a symptom of celiac disease too.  :(  

 

Good luck with the biopsy.

BritChick Newbie

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?

Stacy, I was diagnosed with gastroparesis in 2009.  My main complaints at the time were frequent vomiting after eating and a lot of stomach acid that no acid refulx meds could cure.  I did a stomach emptying test that showed slow emptying and was prescribed reglan.  After reading up on reglan I was too frightened to take it and ended up in the alternative medicine arena.  I've been gluten free for over 11 years now.  Never been tested for celiac but if I eat gluten I have abdominal cramping and diarrhea and blisters that break out behind one of my knees.  Avoiding gluten cured all of that and the sudden onset in 2009 of vomiting and acid was a huge emotional upset for me since I thought I'd figured out how to eat and be healthy and feel good.  I went to the ER several times over six weeks and had every test imaginable (gallbladder, endoscopy etc.) and all looked fine other than stomach inflammation on the endoscopy results.  A natural medicine practitioner was convinced I was dealing with a gallbladder issue that couldn't handle certain fats/proteins and told me she was certain I was blood type A and needed to try vegetarianism.  Turned out she was right.  I've lived on a diet avoiding high fat foods in addition to no gluten and no meat and been perfectly fine since 2009.  Fish, eggs, cheese and yoghurt seem to be OK although I have to go easy on the cheese and yoghurt amounts.  I am actually in the middle of a relapse right now due to overconsumption on many fronts including chocolates and wine over the Holidays, although the final straw seems to have been a small helping of ham I decided to try a week and half ago.  I spent the night with the toilet after eating the ham.  Apparently I needed a reminder that meat is not my friend.  What I've learned over the years is that there can be many causes of food digestion problems, and sometimes changing your diet is all that is needed.  This doesn't work for everyone, but if you can feel better avoiding certain foods then it's totally worth it.  There's lots of resources for how to start a food intolerance elimination diet - that's what I did 11 years ago for the gluten.  Intolerance or allergy to gluten seems to often go hand in hand with intolerances or allergies to other foods.  Good luck to you, Joanna

  • 3 weeks later...
Rosiesallergies Rookie

My gastroparesis was diagnosed just before my Celiac diagnosis. My gallbladder was also removed at that time. This all happened many yeArs ago. I was prescribed Reglan which worked like a charm for a long while. My doctor informed me there's a medicine lime Reglan that's sold in Canada, but the Canadian version is much more effective and safer than Reglan. I kept taking the Reglan for probably a year. Now when I here all the reports about Reglan I'm concerned. I found adjusting my diet to easy to digest, low fat, gluten free foods made a huge difference. Digestive supplements also help. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748

    Dan Bryst
    Newest Member
    Dan Bryst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.