Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Reducing Gluten But Not Eliminating Provide Benefits?


phil76

Recommended Posts

phil76 Newbie

Hello Everyone, 

I am a first time poster. I have not been diagnosed with Celiac or as gluten sensitive, but have experienced IBS type symptoms for most of my life. I feel a close look at my gluten intake might be beneficial.

 

My question is, does reducing gluten intake render any benefits, or is it an "all or nothing" sort of thing, whereas the same amount of gluten antibodies remain in your system if only trace amounts of gluten are ingested. 

 

I ask this because even if I for the most part eliminate gluten from my diet, there will be those times when I have dinner at a friend's or at a restaurant without gluten-free options. 

 

Thanks!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. It would be a good idea to ask your doctor to do a celiac panel before you go gluten free. If you are celiac and later on decide you want to be tested if you are already gluten free you would need to do a challenge. If someone needs the diet that challenge can be pretty miserable.

If you are celiac you are producing antibodies as a reaction to gluten. Even a small amount will cause the antibody reaction so you do need to be strict.

It can take some getting used to the diet especially as far as eating outside your home goes but the trade off of good health is well worth the hassle.

nvsmom Community Regular

Ditto Ravenwoodglass. Before I knew that I had celiac disease, there were periods in my life where I was eating gluten-light and I did notice that I felt a bit better BUT that was just in my symptoms. There was an autoimmune reaction and increased inflammation in my body regardless of what symptoms I had at the time. Some celiacs do not have any noticeable symptoms but their gut could be getting permanently damaged and the increased inflammation could later trigger more autoimmune diseases, heart disease or cancer.

 

Basically, symptoms don't tell the story of what is going on inside. Everytime a celiac eats gluten they are becoming ill even if their symptoms aren't reflecting that fact.

 

Get tested and then try the diet.  I hope it works for you.

 

Oh, and don't worry about eating out and staying gluten-free. Sometimes you may need to bring your own food, and you may end up eating salads more than you every wanted to, but with some prior planning and a bit of research, we can usually eat out without damaging our bodies for the next few weeks.... That's how long the effects linger, so if you eat gluten a couple of times a month, and you are gluten sensitive, you will experience inflammation and damage that entire month.  :(

 

And on that happy note...Welcome to the board.  LOL :)

1desperateladysaved Proficient

I believe you are smart to look into a gluten intolerance.  I hope you will get definitive answers.

 

Before I knew about my intolerance, I didn't eat wheat and ate instead lighter gluten grains.  I almost died!  The damage just kept getting worse.  Gluten light won't do it if you do have celiac!  I didn't have family history.  But my genes were totally positive.  I hope you will find out if you do have celiac.  I hope you will learn to follow the diet if you do.  After you begin the diet 100% your body probably will complain when you slip!  Friends can usually accommodate you when you come with your own food if necessary.

 

D

phil76 Newbie

Thank you everyone for all the feedback :-) I will ask my doctor to be tested and go from there. If I do have to proceed with a gluten-free diet this forum is an excellent resource.

Bella11 Newbie

I agree with the other posters to get tested for celiac disease before going gluten free.  I have celiac disease... my sister was told she has IBS however often this is a misdiagnosis.  Luckily my sister is so far celiac disease free, however as the symptoms can be confused it is worth checking.  She does find that cutting way down on gluten (especially wheat) has helped, however she is safe to have some when she wants it whereas I am not.

 

If you do indeed have IBS rather than celiac, there are other dietary recommendations which apparently can assist with IBS, most notably the FODMAP diet.  Open Original Shared Link  

phil76 Newbie

I agree with the other posters to get tested for celiac disease before going gluten free.  I have celiac disease... my sister was told she has IBS however often this is a misdiagnosis.  Luckily my sister is so far celiac disease free, however as the symptoms can be confused it is worth checking.  She does find that cutting way down on gluten (especially wheat) has helped, however she is safe to have some when she wants it whereas I am not.

 

If you do indeed have IBS rather than celiac, there are other dietary recommendations which apparently can assist with IBS, most notably the FODMAP diet.  Open Original Shared Link  

Thanks. Downloading the FODMAP smartphone app.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Just to make sure you get the right blood work when you go to your doc; here is the FULL current celiac blood panel. anything less than this is not a complete test for celiac disease. Get copies of your test results when they are back & look them over yourself to make sure everything was done right. You have to be your own health advocate. Docs will say they did the full panel but if they don't know what the full panel is then...... and many do not know what the full panel is. Continue a FULL gluten diet until all testing is completed.

 

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA 
 
The DGP test was added recently to the full panel.
 
 
Also can be termed this way:
 
Endomysial Antibody IgA
Tissue Transglutaminase IgA 
GLIADIN IgG
GLIADIN IgA
Total Serum IgA 
Deamidated Gliadin Peptide (DGP) IgA and IgG
NoGlutenCooties Contributor

I agree with the others that you should first be tested for Celiac, but that said, to answer your original question - yes, if you do not have Celiac I believe there is a benefit to reducing the amount of gluten intake even if you don't go completely gluten-free.  Think of it as being similar to sugar in this regard.  Would it be best to avoid all sugar consumption?  Probably.  But most people can tolerate a moderate amount of sugar, as long as you don't over-do it.  What constitutes "over doing it" varies from person to person.

 

If you don't have Celiac, I suggest you try going completely gluten-free for a couple of weeks and see if you feel better and your IBS symptoms ease up.  If they do, and they then get worse when you eat gluten again, you'll know that you really shouldn't be eating it.  It then becomes a matter of determining how much you can eat without feeling icky.  So maybe eating it outright wouldn't be good for you, but you might not have to worry so much about minor cross-contamination issues, etc.

 

If you do have Celiac, everything I just said goes out the window and you need to be 100% gluten-free.  No exceptions.

eers03 Explorer

If you are Celiac, its all or nothing.  If you suspect a connection, get a Celiac blood panel from your doctor and go from there before you stop or reduce your gluten intake.  If you stop eating it, feel a difference, then go in for the test it can yield a false negative.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.