Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Needed

eeyor-fan

Recommended Posts

eeyor-fan Contributor
eeyor-fan
Posted

I'm newly diagnosed as Celiac in the last couple months and I'm, on the most part, getting the hang of the whole thing; even contacted 2 of my favorite companies and found out that "Clean and Clear" is gluten-free as well as the "Healing Garden Mint Therapy" bath and body products is gluten-free (not sure about the rest of their products. I've learned alot by reading all your messages but really need help. What would you recommend for pain relievers since I read Tylenol has gluten and I really need help on shampoo, gel, hairspray etc. I know you say Pantene is gluten-free but does that include the new line with amino acids ( I tried to call the company but the rep I got just fell off the turnip truck and her answer was "If it gives tou a rash then do not use it)? I'm looking for something along the line of the biosilk with the sik protein that I cannot use anymore (due to the darn wheat in it) and need something with volume due to the thinning problem I've had. My nutritionist ( who admitted she knew nothing about Celiac and ended up getting fired by me and my doctor for giving me misinformation on my diet) pointed me in the direction of the "Back to Basics shampoo" but that made my scalp a million times worse. I'm in awe of all of you people on this message board because sometimes I'm so lost in all this I'm just not sure if I will ever get it! :(;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

hey there! take a deep breath... it does take some time to replace all of our products. there is a lot! go here to read all of the products i use: Open Original Shared Link

i have thin hair with lots of scalp issues... my favorite shampoo is listed (the rosa mosqueta). i swear my hair looks awesome when i use it--tons of body and lift. i was shocked--it works better than anything else i used before.

where did you read tylenol is not gluten-free? because it is gluten-free--you can go ahead and take it. that goes for canada too. just be aware of generic versions. go here to ck it out: Open Original Shared Link (this is a helpful resource)...

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

Your a life saver. I can not thank you enough. The tylenol thing I think I read on another site and had some bad times with no tylenol. I assume the ones with the gel caps are off limits wouldn't they be? Someimes I don't think my entire body (5 feet tall) is big enough for all this info I'm learning...LOL :P THANK YOU, THANK YOU, THANK YOU!

jrom987 Apprentice
jrom987
Posted

Eeyor - I posted a thing on Paul Mitchell Products. If you can't find it, let me know and I will email a copy of what the company sent to me. I am new too so I share in your fears and concerns. :D Jo Ann

jenvan Collaborator
jenvan
Posted

happy to help!!

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

I found it. Thanks I'll check them out too. My name is Bridget by the way...another user already used my name. :huh:

darlindeb25 Collaborator
darlindeb25
Posted

I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok. I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free. Deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eeyor-fan Contributor
eeyor-fan
Posted
  • Author
I only use Pantene and mine has amino proteins in it and I am fine, also very sensitive--so, I know Pantene is ok.  I also take Tylenol--dont know that I have had gel tabs--I do take Advil Gel and they are gluten-free.  Deb

<{POST_SNAPBACK}>

:D Thanks that helps. I started out in all this with so much misinformation from my former nutrishionist and other uneducated sourced that I ended up so confused and now I'm just trying to sort through it all, forget the wrong stuff, and just get it all straight. I'm really confused and you all could never under stand how deeply I appreciate all your help!

Hugs

Bridget ;)

jenvan Collaborator
jenvan
Posted

bridget-- if i was you, i would also read 'wheat free, worry free' by danna korn. it will educate you on all the aspects of celiac and living gluten free. i ordered mine from amazon but you could get it in a bookstore too.

eeyor-fan Contributor
eeyor-fan
Posted
  • Author
bridget--  if i was you, i would also read 'wheat free, worry free' by danna korn.  it will educate you on all the aspects of celiac and living gluten free.  i ordered mine from amazon but you could get it in a bookstore too.

<{POST_SNAPBACK}>

Ok I'll check it out at my local Barnes and Noble, I just got my own copy of the "Gluten Free Bible" there. B)

jenvan Collaborator
jenvan
Posted

be cautious of the 'gluten free bible'. there have been quite a few discussions on the boards here about that book. many feel that there is misinformation given in it. i've never heard a complaint about danna's book though...

hthorvald Rookie
hthorvald
Posted
be cautious of the 'gluten free bible'.  there have been quite a few discussions on the boards here about that book.  many feel that there is misinformation given in it.  i've never heard a complaint about danna's book though...

<{POST_SNAPBACK}>

Two other books that I live by are: Gluten-Free 101 by Carol Fenster and Gluten-Free Diet by Shelly Case. Both books describe in layman's terms the disease, what to avoid, what to embrace. Both books are very positive, too. And, for the most part, the information seems very accurate.

Check 'em out.

Helen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.