Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Hip, Celiac Or Not? (Any Comments Appreciated)


tallypop

Recommended Posts

tallypop Rookie

I get allot of back pain/hip pain/neck pain, well now my right hip is noticeably swollen, its quite strange and its happened before, I was just wondering if anyone else has had this kind of symptom or if its more and IBD symptom?

 

I'm still not sure if what's going on is more a result of and IBD or Celiac, or something else my doctors haven't been that helpful, I think the only way Im going to get treated properly is if I get drastically ill and something else flags in my bloodwork...

 

I really hope its celiac over an IBD

 

Thanks in advance  

  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Although a lot of people get joint pain with celiac, hip swelling seems a little extreme to be just caused by untreated celiac disease.  I looked back at your previous posts, have you ever been screened for an autoimmune disease?  In general, if you go gluten free and it makes you feel better go ahead and do so, but there seems to be something else going on.  If I were you I would get a copy of all tests that have been done so far(so no costly repeats) and go to a new doctor. 

tallypop Rookie

It is odd, it's the hip I get more pain in, I believe I have. My white blood cell count came back slightly lower than it should be, and my iron and vit D are much lower than they should be. So I think it's related to my stomach in some way, It's very confusing.

Thanks

tallypop Rookie

I should say that it's not always swollen just flares up every now and then, my wrists and ankles hurt as well, but whenever these symptoms flare my stomach is also problematic. My stomach aching/bloating was the first symptom I had the joint problems followed. It might be worth noting my kneecaps have dislocated a couple of times. No idea if this relates to celiac or not?

Thanks

MGR Apprentice

I actually have both, Ulcerative Colitis and celiac symptoms. Apart from gastric issues, I also get horrendous joint pains in every single joint in the body, including hip pain that is so strong I have to hopple along- I've had it for most of my life and has been called seronegative arthritis caused by some intestinal symptom... Which for year was thought to be my UC. However, I have also been diagnosed with celiac and have been gluten free for a few weeks now. I am still learning on how to stay gluten free... and have been feeling fabulous, even my joints and my UC feels also so much better.. Over the weekend I got CCd twice with food I thought was naturally gluten free- I know now when I have been CCd : first thing, I get a burning sensation in my tummy, gradually I get an all over tummy ache and intermittent pinchy feeling that lasts for several days, but also approx the next day of ingesting gluten I get D wh ch continues for a few days- joints start to ache slowly, continuously increasing until every single joint is on fire....horrendous leg pains in the muscles, brain fog.. A feeling I will never wake up, and so it goes on. I f I am not careful with what I eat further, the symptoms develop into explosive D, bubble bloating and terrible wind- blood and mucus... In sum, the UC flares up and it looks like both things are working together with me, but iam able to distinguish symptoms for both conditions...

I don't know if this is new research but I have read somewhere that individuals with ulcerative colitis are at a higher risk of developing celiac .. Will have a look for the link and get back to you..

 

(please excuse my shocking English language syntax and spelling...)

MGR Apprentice

Here is the link from the UK NHS-site where it mentions that individuals with type 1 diabetes and Ulcerative are at a higher risk of developing celiac disease, hope this helps?

 

Open Original Shared Link

tallypop Rookie

Thank you, that does help, I have some days were I feel ok and others where I feel awful so its hard to pinpoint what exactly is wrong, but I certainly feel less in the dark with this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Seeeye
    Newest Member
    Seeeye
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…                 
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Fayeb23
      I’ve recently had bloods test due to fatigue. Iron was found to be low Serum ferritin level 4 ug/L so doctor sent for Coeliac test. Results have come back TTG ABS NUMERICAL > 250.0 U/mL is this a high reading? Am not waiting a Gastroenterology referral but this could take 10 weeks! This is all total new to me, didn’t think for a second I would have coeliac disease. Been advised not to change diet until seen by specialist 
×
×
  • Create New...