Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened? My Own Stupid Mistake..tmi


frozen

Recommended Posts

frozen Newbie

Hi, 

 

I am a recently diagnosed celiac. gluten-free since November 2013. My symptoms were anemia (now subsided), lethargy and Constipation . So after going gluten free It has been hard for me to notice if I have glutened myself. This makes me more paranoid about any food I eat :ph34r:   

I am coming to you guys with this question hoping there will be someone else who has similar symptoms. I apologize for the long rant.

 

So I bought this coconut macaroons from good earth cafe . They were packed in a transparent wrapping with  just a little sticker on them saying its gluten free. There was no ingredient list on it. Just a clear wrapping. And i ate about 3 of them (I know I have already smacked myself for doing this  :wacko: ) but I am not sure if I have been glutened. My symptoms included just constipation for 1 day and this  uncomfortable and weird "hot" feeling in tummy for about an hour. Now I should say when I have any kinds of nuts in large amounts it makes my tummy feel upset (no D and no C..just weird) and I did eat lot more macaroons than what I should have had. I also had same reaction to the gluten free coconut macaroons I bought from superstore with all the ingredients listed on it (there was no gluten).

I am not sure if I was glutened or my body just does not like coconut  :(  I was hoping to go for the 3 month follow up blood work for celiac by end of this month. Does this mean that I have to start counting my 3 month all over again? 

 

Thanks in advance for answering my question :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

First, one mistake isn't the same as undoing the entire time you've been gluten free. It took time to do damage to your body, it didn't happen in one overindulgent moment with cookies.

 

So, the cookies... the first mistake was simply trusting the sticker on cookies that they were gluten free without an ingredient label and from their cafe. I've been in their cafes, not only are they not gluten free but they make things with flour. Flour will hang in the air and coat everything around the area you work with it with a fine dust. (This is why none of us allow flour to be used in our homes, even if we have a shared home.) Unless you have a conversation with staff from a cafe or other restaurant type place about the safety of their food in general and possibly a specific product, it is never safe to assume anything. At least you've learned something though.

 

Again with the other cookies you bought. They were cookies. Just because there were no gluten ingredients (duh, it's a macaroon) doesn't mean they were gluten free. Any time I make a purchase of something that has a high likelyhood of being produced in, near or around other flour containing products (cookies, other baked goods, pastas, the list could go on and on) I do one of two things. I look first for it to list on the package that it was made in a gluten free facility, if it doesn't have that I will simply call them to find out if it is safe. Sometimes it is, sometimes it isn't.

 

Of course, it is still possible your body just doesn't like coconut. But I would try plain coconut for that so things aren't muddled by other factors. And remember, don't buy it in a bulk bin because they aren't safe either. Good Earth will sell you an entire box of anything they sell in bulk for a 10% discount off the price if you like to buy in bulk. (And since you have Good Earth there, maybe you have Winco, they do the same.)

NoGlutenCooties Contributor

It does sound to me like there is a high likelihood that they had been contaminated with some source of gluten.  However, that aside, that is also a lot of hard-to-digest fat to consume all at one time.  Same with the nuts.  Have you tried taking a digestive enzyme whenever you consume protein, fats, etc.?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.