Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Hypoglycemia, And Unable To Lose Weight


chris235

Recommended Posts

chris235 Newbie

Hi everyone,

I'm new to the forum but am desperate and hoping someone can help me.

 

I've been gluten-free since 2009. I developed reactive hypoglycemia about 2 years ago. Ever since, my weight has been creeping up. I do NOT eat refined foods (rice, gluten free bread, potatoes, etc). I rarely if ever eat fruit because it makes my sugar crazy.  I eat a diet mainly composed of protein (grilled fish, eggs, chicken, turkey burger, pork loin, and yes occasionally ground beef so that I don't go insane - although I do not eat steak). I also eat a lot of veggies steamed and grilled veggies. I do eat Atkins meal bars (the ones without wheat of course) once a day.

 

I'm overweight but when I try and exercise - I find myself hungry or shaky a few hours later if not immediately and then find myself eating more protein and veggies (ie - more calories).  That's pointless because i'm simply replacing what I just burnt during exercise.  If I simply cut down how much I eat (further than what I am already doing) - I get shaky.  I eat three meals a day. 

 

What in the world am I doing wrong???  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!

I can not speak for the hypoglycemia, but have you tried eating six small meals a day? I am a grazer and this keeps my hunger at bay.

Also, folks with celiac disease have a higher incidence of Hashimoto's thyroiditis (I am one of them).

chris235 Newbie

Welcome!

I can not speak for the hypoglycemia, but have you tried eating six small meals a day? I am a grazer and this keeps my hunger at bay.

Also, folks with celiac disease have a higher incidence of Hashimoto's thyroiditis (I am one of them).

Two years ago I tried the six small meals a day and cutting my caloric intake to 1200 and I did lose weight. But I wasn't able to keep it up because I can't eat every 3-4 hours at work. :-(   I didn't have my thyroid checked in 2013 but in 2012 my blood work came back okay so I didn't think anything more about it. Perhaps I should have it rechecked as I have struggled with this for over one year now. I didn't even think about it.  Thank you so much for the suggestion!

cyclinglady Grand Master

To test for Hashi's you need a complete panel that includes testing for thyroid antibodies.  When I first was diagnosed with Hashi's, my TSH was in range but my antibodies were sky high!  A little hormone supplementation did wonders!  

chris235 Newbie

Welcome!

I can not speak for the hypoglycemia, but have you tried eating six small meals a day? I am a grazer and this keeps my hunger at bay.

Also, folks with celiac disease have a higher incidence of Hashimoto's thyroiditis (I am one of them).

Thank you so much! Since your post, I have eliminated my caffeine and have begun to do yoga focused on the neck. It turns out that the yoga moves I was performing was actually not good for hypothyroidism either.  So until I can get into my doctor, I'll do these small things to see if it helps.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    Kristina S
    Newest Member
    Kristina S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.