Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Had A Complete Thyroid Panel.


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Thyroid Panel was within range throughout.

 

.  Do I assume I never had an issue?  Or could there have been improvement since gluten free?  I had many symptoms and several people here told me to get tested and also a doctor that specializes in celiac told me to get it tested.  At any rate, I am glad that this, anyway, isn't being a problem for me.

 

Anyone had improvement in thyroid using supplements and diet alone?

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Be careful with that normal range, it can include a lot of people with thyroid problems. TSH should be near a one regardless of the range. FreeT3 and Free T4 should be in the 50-75% portion of the lab's normal range. TPO Ab should be low too.

Just makes sure you look at the whole picture before dismissing thyroid problems. They can be hard to see. Take me for example, for years my TSH was between a 4 and a 7. My doctors called that normal. When my TSH finally went high enough for the doctors to admit to a problem, my free T3 and free T4 were still normal (albeit at the bottom of normal) as was my TPO Ab (top of range).... I am not on a full replacement dose of thyroid in order to feel better; my thyroid was not doing much even though it looked fine.

I hope the tests are right and everything is fine.

1desperateladysaved Proficient

I would appreciate it if someone would take a look, but don't care to show everyone.  One number was at the bottom of the range.  Also, if someone thinks there may be a problem, who would I see or talk too?  The MD would have only tested TSH and said it wasn't needed to do more.  I ended up paying for the rest of the panel.  I don't think she knows too much about it. Neither did the last MD.   Is there a special thyroid doctor one could ask?

 

D

GF Lover Rising Star

An Endocrinologist is the Doctor who would handle the Thyroid.  Hopefully your is fine.

cyclinglady Grand Master

When my TSH is between a 1 or a 3 I feel fine. My t3 and t4 levels have always been in the mid-range. My antibodies are all over the place (above 300 to the 1,000) and are still high despite being gluten-free for almost a year. I worry about becoming hyper rather than hypo because my hyper symptoms are much worse (anxiety, jittery, weakness, bone loss, and eye problems which is the scariest since my Mom has Graves and has permanent double vision. I spent two years swinging back and forth. I would take hypo any day!

I guess what I am trying to say, is that you just have to go by your symptoms and having a TSH close to a 3 is good for me. My TSH was a .8 two weeks ago. I feel good, but am carefully monitoring my symptoms.

Desperate, were your thyroid antibodies okay? That would rule out autoimmune thyroiditis.

nvsmom Community Regular

An endocrinologist is a good place to start. I had to go to an alternative practitioner (orthomolecular MD) because endocrinologist do not see people for "plain old" hypothyroidism up here... well they do but it takes a year to get in.

 

I pm'ed you.

1desperateladysaved Proficient

My T3 was at the lowest range.  I just remembered seeing improvement in my health while painting iodine unto my skin in a quarter size. I forgot and left that behind long ago.  I guess maybe I need to make sure I get my iodine!

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    2. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      26

      Inflammation and Menier’s disease link?

    3. - Zuma888 replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    4. - Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Hypothetical question about antibodies

    5. - Betsy Crum replied to Betsy Crum's topic in Related Issues & Disorders
      4

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,233
    • Most Online (within 30 mins)
      7,748

    JGBJ
    Newest Member
    JGBJ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...