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I Need Some Help


addymommy24

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addymommy24 Newbie

Ok i have been dealing with this crazy breakouts for about 1year and half. None of that doctors can figure out whats causeing md to break out. I have figured out that im dealing with dermatitis herpetiformis, i have stop eatting stuff with gluten and the itching and the burning and the blistering has gone down. Im still having smaller out breaks but i was having break outs all over my body. Its really hard going gluten free. I need help tring to find a doctor or type of docter to contact to get diagnosis or if theres some kind of test ive been diagnosed. With 5 different diseases and i took meds and no luck. Also i saw that some people also dont eat or drink milk products when they r on a gluten free diet. Is that important not to eat or drink milk products? Im so frusterated. Im itchy all the time and my face is horridle looking sometimes because the blisters turn in to scabs and than im scared to go into public because of the stares. I have been gluten free for about two weeks and it has helped alot but if i mess up and eat something with gluten my skin goes crazy. Help please


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squirmingitch Veteran

You need to read this entire thread all the way through & read the links contained in it also. That will tell you what you are asking & about the tests & about why the tests won't work for you now because you are already gluten free.

https://www.celiac.com/forums/topic/105888-newbie-feeling-desperate-how-long-before-i-see-improvement/

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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