Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Gluten Free But Having Lots Of Allergic Reactions


T.H.

Recommended Posts

T.H. Community Regular

I just came across some information that I thought might be of interest in those who are gluten free but have a lot of symptoms and seem to react allergically to many OTHER foods.

 

There is a somewhat controversial condition known as Histamine Intolerance that is speculated to involve abnormally low levels of DAO, the enzyme that destroys histamine. If histamine levels rise due to this, then they can begin to cause allergic reactions like congestion, headaches, sneezing, itching, rashes, hives, even breathing issues, or stomach and gut problems.  

 

Some women can even experience a cessation of their allergy symptoms when pregnant, because the placenta releases high levels of DAO and so histamine breaks down faster. 

 

The reason this may be of interest to Celiacs or gluten intolerants is because one of the places DAO is found in the membranes of cells lining the small intestine, and in the upper portion of the colon. So people with damage in either of these areas may not be making as much DAO as they normally would. 

 

So if you are recently gluten free, haven't healed up yet, and are having many allergic reactions, it might be worth you while to check out histamine intolerance and a low histamine diet, too. :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Hi TH,

 

I posted a thread about this not too long ago and I linked to Jess' article as well, if you are interested!

 

 

https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/?hl=%2Bmast+%2Bcell

T.H. Community Regular

Oh, thank you for the link - I haven't seen that one before. :-)

IrishHeart Veteran

Oh, thank you for the link - I haven't seen that one before. :-)

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

T.H. Community Regular

Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

 

 

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

IrishHeart Veteran

Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

I do not get that reaction from exercise or sun (thank goodness as we have just moved to Florida and that would have been

a bummer )

but Gotta Ski Lisa does. Foods and food additives mess with me. My face and scalp become polka dotted with sores and 

my joints and bones hurts, heart palps, I get racy and suffer  insomnia. I  swell up and look and feel if I have been injected with helium

T.H. Community Regular

Ouch!  Sympathies. 

 

Although OMG - am I remembering right that you get headaches from perfume sometimes? Now it makes sense!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,765
    • Most Online (within 30 mins)
      7,748

    Doug McKee
    Newest Member
    Doug McKee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain 02:01. Since your child has two copies of the beta chain (02:01) but only one full *05:01 alpha allele (the other appears truncated as *05), this suggests they are heterozygous for HLA-DQ2.5 rather than homozygous. The term "permissive for celiac disease" means your child has genetic susceptibility but not necessarily the highest-risk genotype (homozygous DQ2.5). Since celiac disease development also depends on environmental triggers and other factors, further testing (such as antibody screening or biopsy) may be needed to confirm a diagnosis. Consulting a genetic counselor or gastroenterologist can help clarify these results and next steps.
    • Jenny (AZ via TX)
    • DebJ14
      As my doctor said, you don't have to eat breakfast food for breakfast.  I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting.  In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna.  For dinner I have pork, shrimp, chicken, lamb, or turkey with half a baked sweet potato and some broccoli, green beans, beets, carrots or cauliflower.  I do not eat any grains on the advice of my doctor.  I do not eat commercially processed products, even if they say they are gluten-free.  I make Warrior Bread every few weeks.  It has no yeast and contains almond flour and dried sweet potato.  Very tasty too.  A good book to help in this regard is No Grain, No Pain by Peter Osborne.  Thankfully, I can eat coconut and nuts and use those flours in baking and also use nut milks in cooking.  Since I am allergic to chocolate and vanilla, lemon is my go to flavor for something sweet.  My migraines totally disappeared once I went gluten and casein free.  I can occasionally eat certain high fat cheeses that are low in casein, as well as grass fed butter.  I use lots of Organic Olive and Avocado oil. The problems I thought I had with nightshades went away when I went fully organic.  And, the rest of my issues went away by avoiding the foods I tested positive to as well as avoiding all grains. I will be the first one to say that it is a very expensive way of eating, but thankfully we can afford to eat that way.  The good news is that I take no prescription meds at age 72.  At 54 before diagnosis, I was a mess and on a boatload of pharmaceuticals.  
    • lmemsm
      With that many foods removed from your diet, what do you eat?  I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables.  Have allergies to coconut and issues with nuts so those are out.  I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control.  Just having so many issues figuring out what to make at meal times.  What's a typical breakfast look like for you?  Thanks.
    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
×
×
  • Create New...