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Anyone With Nerve Issues?

CaliSparrow

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CaliSparrow Collaborator
CaliSparrow
Posted

On Wednesday, I was weak and reasoned that introducing dairy back into my diet was a good idea. Bad idea.

One of the worst symptoms is the feeling of electrical currents shooting down my legs. My nerves are on fire and I have little tolerance for noise. It is jarring to walk barefooted across my tile floor. It also seems to affect my head in that there's a quick electrical firing that causes a muscle contraction (like when the muscle of your eye twitches during times of stress or lack of sleep). I can feel micro contractions happening in my face or the back of my neck. I have to keep my anger in check since these symptoms make me want to jump out of my skin.

My nervous system is a mess and I wonder if anyone else deals with these types of symptoms.

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FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I don't know how much I can help, but I do know that Peripheral Neuropathy is a common symptom with gluten intolerance. In the beginning before I was gluten free, I had some tingling in my feet, and sometimes going up my legs a bit. It was mild for me, and it returns now and then as I'm continuing to heal. For you it sounds pretty severe and you might want to see an MD maybe? A Neurologist? Just a thought.

 

Anger and irritability were definitely major symptoms for me and lasted awhile into my recovery, but have passed now.

 

As far as I know, dairy is never a good idea for anyone's diet, especially anyone with gastrointestinal issues. I plan to keep it out of my diet permanently. It is especially hard for our bodies to digest, I think it's the hardest thing for us to digest, but I'm not sure. I used to have it daily before I became gluten free, so I can sympathize with anyone trying to give it up. I think coconut milk is delicious, if that's an option for you, and tastes the most like cow's milk to me.

 

Hope you feel better :)

CaliSparrow Collaborator
CaliSparrow
Posted
  • Author

Thank you. I'll mention it to my doctor. She's gluten intolerant and that's a plus. When I first went gluten-free, I began drinking coconut milk and using coconut oil. It must have been too much. Now I'm intolerant to it and don't want to reintroduce it until I've healed more. Nothing I've reintroduced comes without symptoms :(. Hopefully, waiting longer will make a difference. *ergh*

The dairy culprit was a gluten-free pizza with cheese and it just felt good to eat it. Cheese used to be my big comfort food. I just can't believe these symptoms are so bad. Not like gluten but definitely worth turning down. No more cow cheese ever again.

1desperateladysaved Proficient
1desperateladysaved
Posted

I am having trouble with being numb.  There was a time when I burnt my finger and didn't know it until I saw smoke!  I am not that bad anymore.  Still I realize that I am numb.   I am trying to get my body all of the vitamins it possibly needs.  My doctors believe that nerves can heal.  I have one friend that had her neuropathy go away at about 2 years gluten free, so since I am hovering about there, I am hoping.

 

D

CaliSparrow Collaborator
CaliSparrow
Posted
  • Author

I am having trouble with being numb.  There was a time when I burnt my finger and didn't know it until I saw smoke!  I am not that bad anymore.  Still I realize that I am numb.   I am trying to get my body all of the vitamins it possibly needs.  My doctors believe that nerves can heal.  I have one friend that had her neuropathy go away at about 2 years gluten free, so since I am hovering about there, I am hoping.

 

D

Ouch to the smoking finger! My mom had numbness like that when I was young. She would cut her hand and not know it. It always makes me wonder. My doctor told me my CNS had been very impacted but I can't remember which thing she attributed it to, my appointment was so l-o-n-g! Maybe Vitamin D? Probably more than one thing as I have mercury poisoning on top of the rest of this and that certainly messes with the nerves too. I am taking Vitamin D plus a few more. I am wondering if those symptoms are what made me feel crazy before and now, the symptoms are easier to differentiate since I've healed a bunch. It felt nuts to have them react like that over dairy. It's been long enough that I don't remember if this happens when I've ingested gluten but I have a sneaking suspicion it does. It seems misplaced to put this in the "food intolerance" category.

It's good to know your doctors believe nerves heal. It's probably a good idea to take stress relieving measures whenever possible. I guess not waking up in an anxiety attack is a good reminder of how far I've come. Those days were horrendous.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

You may want to get your vitamin B levels checked.  Vit B deficiencies can cause numbness and tingling.  Can cause anger and mood issues too.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

The dairy culprit was a gluten-free pizza with cheese and it just felt good to eat it. Cheese used to be my big comfort food. I just can't believe these symptoms are so bad. Not like gluten but definitely worth turning down. No more cow cheese ever again.

 

I had to cut out coconut too, but I enjoyed it while I had it! I think I'll get it back in time.

 

My ND said that cheese made from sheep or goat milk is ok, and not like cow's milk. I haven't done anymore research on it so I don't know. I don't dare try it just yet, but it was encouraging to think that one day I might get Romano cheese back. It tastes just like parmesean and it can be made from either cow or sheep's milk depending on the manufacturer.

 

I know what you mean, all my comfort foods have been taken away, and dairy had been a big one, such a bummer.

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CaliSparrow Collaborator
CaliSparrow
Posted
  • Author

I had to cut out coconut too, but I enjoyed it while I had it! I think I'll get it back in time.

 

My ND said that cheese made from sheep or goat milk is ok, and not like cow's milk. I haven't done anymore research on it so I don't know. I don't dare try it just yet, but it was encouraging to think that one day I might get Romano cheese back. It tastes just like parmesean and it can be made from either cow or sheep's milk depending on the manufacturer.

 

I know what you mean, all my comfort foods have been taken away, and dairy had been a big one, such a bummer.

Yes, I have been using goat yogurt (a little dollop in my chili) with no discomfort. I don't go overboard. I've drunk goat Kefir which was yummy but after a while I seemed to become more sensitive to it. The goat cheese mozzarella is a little harder to stomach so I avoid it. I do think it's different.

Nothing was like this dairy debacle. It's still going on! My husband said there were four types of cheese on there and he believes that's why it hit so hard. He also reminded me I hadn't had milk in decades and that he always considered me lactose intolerant long before the gluten discovery.

It almost feels like I've been glutened. My face is distorted and I pushed it too hard today. Going to bed!

1desperateladysaved Proficient
1desperateladysaved
Posted

I had the honor of owning goats and taking in their milk when I was at my bottom.  I don't tolerate their milk either.

CaliSparrow Collaborator
CaliSparrow
Posted
  • Author

I'm glad I don't have a goat to care for.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I grew up on a small farm and we had goats.  Very cute and friendly.  Very smelly... but very cute.  I always thought the goat's milk tasted the way a goat smells.  What they ate always effected the taste of the milk too... I remember if they got into the daisies their milk would be very bitter.  My sister and I let one of the big nanny goats into the house once to get rid of a very bad babysitter... but that's a whole 'nother story...  :ph34r:   (it worked tho!)

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

My sister and I let one of the big nanny goats into the house once to get rid of a very bad babysitter... but that's a whole 'nother story...  :ph34r:   (it worked tho!)

 

That's so funny, thanks for making me laugh!!!

CaliSparrow Collaborator
CaliSparrow
Posted
  • Author

My sister and I let one of the big nanny goats into the house once to get rid of a very bad babysitter... but that's a whole 'nother story...  :ph34r:   (it worked tho!)

I agree, thanks for the laugh!

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Well, this is weird. I'm feeling better and better lately, especially the last few days, and now the neuropathy in my feet has returned. For me it feels like soft vibrating in my heels. Doesn't make sense. This a symptom that has returned a few times before, then dissapeared again. It's never really uncomfortable, but the timing is puzzling. I'm wondering if it will be a symptom that comes around now and then. I guess it could be part of my recovery, maybe part of the process of my body ridding itself of toxins. Hmmmmm.

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