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Lupus/scleroderma/other Autoimmune Diseases

Celiacandme

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Celiacandme Apprentice
Celiacandme
Posted

Has anyone experience symptoms of the above auto immune diseases, or any others, during your first few months after diagnosis/on a gluten-free diet and actually in the end not had those other diseases?

 

 

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nvsmom Community Regular
nvsmom
Posted

YES! I was convinced I had Lupus because of the pain, and because I had a severe arthritic, fatigue, hair loss flare-up after being gluten-free about 3 months. It lasted 3 months.  Yuck. Happily it has been my last major flare-up. I have had minor flare-ups since going gluten-free, but nothing like I used too.  I do have other autoimmune problems so symptoms could also be partially from that.

 

Best wishes.

Celiacandme Apprentice
Celiacandme
Posted
  • Author

YES! I was convinced I had Lupus because of the pain, and because I had a severe arthritic, fatigue, hair loss flare-up after being gluten-free about 3 months. It lasted 3 months.  Yuck. Happily it has been my last major flare-up. I have had minor flare-ups since going gluten-free, but nothing like I used too.  I do have other autoimmune problems so symptoms could also be partially from that.

 

Best wishes.

Nicole,

 

Did you ever have any kind of rash on your face? So glad your flare ups have not been as bad as in the past.

GF Lover Rising Star
GF Lover
Posted

Many of us have had multiple autoimmune diagnoses before gluten-free.  For myself, I had suspected lupus (with butterfly rash), sjogrens, reynolds, Fibro, sicca, connective tissue disease. Also had hip bursitis, peri-formis syndrome, sacroilitis...you get the picture.  At one time or another I was also put on Plaquenil, Methotrexate, Steroids, Skin desensitizers (fibro), muscle relaxers, pain killers, anti--inflammatories etc.  I was falling apart at 46 years old and had been for 15 some years.  Of all the issues listed, I have none of them now after 2 years gluten free.

 

I have heard this same story from so many with long undiagnosed celiac.  Gluten Free will not take away every health issue out there, but autoimmune diseases and inflammation issues seem to resolve.  There will always be collateral damage, some body parts are too damaged to heal properly but those are the minority.

 

Hang in there.

 

Colleen

nvsmom Community Regular
nvsmom
Posted

Nicole,

 

Did you ever have any kind of rash on your face? So glad your flare ups have not been as bad as in the past.

Yes. I've had what looks like a butterfly rash (redness) for a few years. It fades a bit at some times, coincidentally when I feel well, and gets redder at other times. It could be a roseaca though as the rheumy is sure I do not ave lupus. I hope she is right but only more time will tell. I am hopeful she was right and it was all due to celiac disease.

Best wishes

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    • AlwaysLearning
      Gluten related ??

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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