Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Symptoms? Im Miserable

candacehp143

Recommended Posts

candacehp143 Newbie
candacehp143
Posted

Imget this horrible itchy stinging rash all over my legs, they turn into sores and look so ugly. Happens almost daily. Massive fatigue, migraine s.. seems like everytime I eat I feel 6 months pregnant, bloated, gassy, and feeling as if there is a hard basketball in mt n stomach. Ill get horricble abdominal pains. I already have hashimotos along with a huge list of other health issues, im sure im leaving out a few other symptoms im just sick of being sick all then time. Any advice would b appreciated

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiacandme Apprentice
Celiacandme
Posted

Sounds like you should definitely ask your doctor to run the complete celiac panel for you. How long has this been going on?

candacehp143 Newbie
candacehp143
Posted
  • Author

I should also mention that I was rushed to the ER about 4 years ago w stroke like symptoms, drooping mouth slurred speech the whole nine. They thought it was ms but mri came back neg.ive seen sooooo many dif drs.i have vit d def. Hashimotos, arthritis, add, heart problems, complex migrains, had my gallbladder out 3 years ago, a hysterectomy last year, on about 6 diff meds a day. Oh and im only 31! Was supposed to get endoscopy done justmwaiting for my secondary insurance to kick in. Thinking I should go ahead and just get the labs done for now

candacehp143 Newbie
candacehp143
Posted
  • Author

The rash and weird gastro symptoms have been going on for about a year or so

Fenrir Community Regular
Fenrir
Posted

Yeah, that rash could be a pretty good sign that you might have celiac, plus the other things you are experience fit as well. I'd go see your physician and get a celiac panel done and have them look at that rash. Better yet, see if you can see a GI doctor. 

Celiacandme Apprentice
Celiacandme
Posted

I hope you can get an appt soon. Definitely could be celiac's. ( Could your thyroid issue be off? I don't know much about thyroid/symptoms that go with it) Get that blood work drawn though - then endoscopy would be the next step. Make sure they draw the full celiac blood panel. Keep us posted!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

The rash could be dermatitis herpetiformis - I don't have any experience with it but from what others have posted here it seems that having DH almost always means you have Celiac.  They can also do a skin biopsy from next to where the rash is (not of the rash itself) and test to Celiac that way.  If you search the forum for DH you should be able to find a ton of information.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,985
    • Most Online (within 30 mins)
      7,748
    Seashells
    Newest Member
    Seashells
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.