Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dao Enzyme Testing

FruitEnthusiast

Recommended Posts

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Went to my Allergist/Immunologist appointment about my overactive histamine levels today. He knew nothing about Histamine Intolerance Testing, or DAO enzyme testing. He thinks my increased food sensitivities are from my leaky gut - he knew what that was! I couldn't get anything more definitive out of him and I had to pry information out of him as he kept trying to walk away - love that in a doctor.

 

He was aware of MCAS. We discussed that and Celiac disease. He didn't think I showed signs of either. It's true the symptoms for MCAS don't match mine, and my blood tests for celiac were negative. He told me blood tests were all that were needed to dx Celiac, and that it didn't matter whether I had stopped eating gluten beforehand. He said a biopsy isn't the preferred test for Celiac at this point. That didn't sound right to me. Hmmmm…

 

I will have to go elsewhere for DAO enzyme testing, not sure if that should be a GI or Naturopath? Can anyone help with that question? I could try DAO enzymes to see if it helps, but I would like to be tested to know if I'm low first. I think it's important to find that out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Sorry...DAO testing is not available in the US to the best of my knowledge.  My primary ordered and calls ping-ponged back and forth between UCSD and Mayo for three hours while I waited for the drama to finish.

 

My info is about a year and half old....but as far as I knew we had to send our results to Oz or Europe.  Believe it.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted
  • Author

I thought I saw something written by IrishHeart that she had the test and is taking the enzymes, which by the way are not easy to find so far. Couldn't find the thread and would love to know anything about about this. I don't think my Allergist had ever heard of it.

 

Where's the mighty warrior princess IH???

IrishHeart Veteran
IrishHeart
Posted

I thought I saw something written by IrishHeart that she had the test and is taking the enzymes, which by the way are not easy to find so far. Couldn't find the thread and would love to know anything about about this. I don't think my Allergist had ever heard of it.

 

Where's the mighty warrior princess IH???

 

 

I never said I had "testing for DAO enzymes" because there are no tests available in this country. I said Jebby (aka Jess) had testing for MCAS.

You would have to read her blog to see what is involved in those tests.

 

THE BEST way to know if you have a true histamine intolerance is to go on a low histamine diet for 4 weeks. If your symptoms improve, that's your answer. My GI doc said 6 months or longer to understand my histamine tolerance level. I know what it is now. I never found that taking DAO enzymes helped much anyway. Save your cash, IMHO.

 

For the record, what I actually said was:

 

 

"I am fortunate that my GI doctor was knowledgeable enough about histamine intolerance and why our guts may be lacking the enzyme DAO and he was very encouraging in that it can resolve in time"

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted
  • Author

So sorry IrishHeart if I misquoted you. I think that must be my brain fog. Seems I have trouble remembering things correctly sometimes. I'll be more careful about that in the future.

 

Thanks so much for your response! Glad to know about DAO testing and supplements, I won't waste energy thinking about that anymore. It's good to know your GI was encouraging that if our guts are lacking the enzyme DAO, it can resolve in time.

 

You sharing your knowledge and experience here is so greatly appreciated, I can't thank you enough!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748
    Juliane
    Newest Member
    Juliane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.