Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

noffwheat

Recommended Posts

noffwheat Newbie

Hello helpful strangers and thanks, for what has already been posted. I recently took the Cyrex Array 3 test and am trying to figure out what the results suggest. I have researched the "out of range" /positive results but am still unclear on how I should interpret them without taking the next step and seeing a specialist.

 

I have been inhaling small amounts of wheat flour where I work, there is always a thin film of dust(wheat)  in a 20feetx20feet area, so even when I have intentionally not been ingesting gluten I am getting some in me, is this significant?   Previous to the test I was eating wheat for a month (but not as much as two slices a day) , following a two month gluten free diet but still inhaling the wheat flour during this time.  .. So is this enough info to suggest Celiac disease or a gluten sensitivity?  

 

My results are :

 

Wheat Germ Agglutinin IgG 1.2  (Reference .4 - 1.3) this is considered an "Equivocal" result. A borderline result?

 

Gluteomorphin +Prodynorphin IgG  1.37 ( Reference .3 - 1.2) (Would anyone who eats wheat test positive for this one?)

 

Transglutaminase-2 IgG  1.63 (Reference .3-1.6

 

I will be glad to give more details if so requested but wanted to be as brief and concise as I could. Thanks again!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Are you thinking you might have Celiac disease? If so, you should be eating a gluten containing diet and see an MD for Celiac blood tests.

IrishHeart Veteran

 

 

from the University of Chicago Celiac Center

  Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex?

We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support.

Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what has been published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease.

We can say therefore with confidence that the test currently being used by these labs is not good enough. In fact, while it is true that about 40% of people with proven gluten sensitivity have elevated AGA-IgG, it is also true that about 15-25% of the healthy individuals who have absolutely nothing wrong also have elevated AGA-IgG. Hence, about 60% of gluten sensitive people do not have elevated AGA-IgG (making the test not sensitive enough); and about 20% of normal, non-gluten sensitive people have elevated AGA-IgG for no apparent reason (making the test not specific enough).

Further reading: Open Original Shared Link at BMJ.com.

noffwheat Newbie

Are you thinking you might have Celiac disease? If so, you should be eating a gluten containing diet and see an MD for Celiac blood tests.

I do not think I have Celiac disease. I would like to go through all the tests but need a better job before I can get insurance to do all that. Thanks and feel free to stop reading here.  :D

 

I have been going to a chiropractor regularly and wanted to see if gluten might be contributing to my problem somehow. With the exception of consuming small amounts of gluten from my workplace environment  (wheat flour in the air) , every time I have quit consuming gluten directly I seem to feel different, better.  But after reading "Wheat Belly" it sounds likely anyone would feel better by eliminating wheat wether there is an issue with gluten or not. 

 

My longest stretch without gluten (2 months ,excluding the work situation)  did not keep me from the chiropractor but with the extra strain I was putting on my body during this time I might say the body had an easier time dealing with the load.  After my two month break from gluten, I returned to eating wheat for about a month before taking this gluten/autoimmunity test. I did not have intestinal problems and never have, either when starting or stopping gluten, although my stomach did appear to get more sensitive to wheat during the last start and stop routine and the last time I consumed any my stomach was in a knot. I did feel worse overall during the return. 

 

I was hoping my results were significant enough to give me some certainty  to a "gluten sensitive" diagnosis or not or point me in some direction. And from what it sounds like through others experiences on here and elsewhere there is no certainty that going through all the Celiac tests (which ones at that?)  will accurately diagnose Celiac, with complications from the doctors themselves and apparently  the nature of Celiac and gluten sensitivities themselves (sufferers are sure they have it but tests say otherwise).   

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,341
    • Most Online (within 30 mins)
      7,748

    Eppie
    Newest Member
    Eppie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.