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Looking For A Celiac Doc In Vancouver, Wa Area


Wi11ow

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Wi11ow Apprentice

Does anyone know either a Primary or a GI that specializes in Celiac in Vancouver, WA?

 

Can you give me advice how to find one?  Do I need to call every office? GP, or GI? I still need blood work done.

I've called a few offices and the person kind of breezes by the answer - oh yeah, doc -fill in the blank- has been a GI for 20+ years. I ask but does he specialize in Celiac Disease? Well he has been in business for 20+ years and know what he is doing... me- ok thank you very much. I don't have confidence the doc know specifically about C.

 

I want to find someone to look at my symptoms, deside to do testing and know that i had a EDG with only one biopsy. A doc that knows, he should have taking 6-10 samples.

 

How do I find a doctor the specializes in, or is knowledgable in C?

 

 

And I have been off gluten for 5 days now. If I go back on today for the test, is 5-6 days away - is that  long enough since I was only off if for 5 days? I know you are offering opinions. My doc said it wouldn't matter....But that's not what I hear on here.

 

Please tell me how you guys found you docs. Are they GI's, Natural? GP's?

 

Thanks


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    • trents
      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
    • Dema
      Ooh thanks for all the info I'll check them out, though I may not be functional after 6 slices for 6 weeks 😅
    • Dema
      alright thank your help! 🤍
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your experience is incredibly common and frustrating for many in the celiac and gluten-sensitive community, and it's especially challenging with the added layer of healthcare disparities for people of African descent. A negative endoscopy and blood panel, while the gold standard, are not infallible and can miss cases, particularly if you weren't consuming a significant amount of gluten leading up to the tests (the "gluten challenge"). Your dramatic improvement on a gluten-free diet is the most critical piece of evidence here—your body is giving you the answer the tests could not. The symptoms you're describing now, especially the dyshidrotic eczema and blister bumps, are huge red flags for a gluten-related disorder, and your GP dismissing the possibility of dermatitis herpetiformis without a biopsy is a significant oversight. Requesting a new dermatologist and specifically asking for a skin biopsy next to an active lesion (not on it) is the absolute best next step. In the meantime, documenting your symptoms with photos and a food/symptom diary will build a powerful case for yourself. While the financial burden of a gluten-free diet is very real, your health is the priority; perhaps focusing on naturally gluten-free whole foods like rice, beans, and vegetables, rather than expensive processed substitutes, could be a more sustainable path forward until you can get a definitive opinion.
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