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Looking For A Celiac Doc In Vancouver, Wa Area


Wi11ow

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Wi11ow Apprentice

Does anyone know either a Primary or a GI that specializes in Celiac in Vancouver, WA?

 

Can you give me advice how to find one?  Do I need to call every office? GP, or GI? I still need blood work done.

I've called a few offices and the person kind of breezes by the answer - oh yeah, doc -fill in the blank- has been a GI for 20+ years. I ask but does he specialize in Celiac Disease? Well he has been in business for 20+ years and know what he is doing... me- ok thank you very much. I don't have confidence the doc know specifically about C.

 

I want to find someone to look at my symptoms, deside to do testing and know that i had a EDG with only one biopsy. A doc that knows, he should have taking 6-10 samples.

 

How do I find a doctor the specializes in, or is knowledgable in C?

 

 

And I have been off gluten for 5 days now. If I go back on today for the test, is 5-6 days away - is that  long enough since I was only off if for 5 days? I know you are offering opinions. My doc said it wouldn't matter....But that's not what I hear on here.

 

Please tell me how you guys found you docs. Are they GI's, Natural? GP's?

 

Thanks


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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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