Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post-Surgery Food


snowmom

Recommended Posts

snowmom Rookie

Really, I'm just posting this because I need to vent, i don't really have a question.

 

My 4 year old daughter is having an adenotonsillectomy in a few weeks. After surgery, she will be on juices and soft frozen foods, and she will need to show that she can hold down liquids before they will discharge her. I'm pretty sure all she will accept in this scenario will be a popsicle. We just went through a similar drill when her non-celiac brother had his adenoids out, so I figured I should call the post-op nurses to make sure that the hospital's popsicles, etc are gluten-free.

 

All that the post-op nurse would tell me is that their apple juice is definitely gluten-free, but she is not sure about anything else they stock in the recovery area. When I asked if she could tell me the brand of popsicles, etc, or even check the packaging, she brushed me off, and told me it wouldn't matter what she told me because "you never know what else they put on the manufacturing equipment." Which is kind of true and kind of not, but it still would have really, really helped me if she could have gotten off her lazy duff to open the freezer and give me a brand name.

 

Instead of doing that, she told me that we should just bring our own popsicles on ice. So now, in addition to getting myself and my poor kid up at 4 a.m. for the procedure, I'm also going to have to worry about keeping popsicles frozen for an hour  and a half of travel and check-in time, and then find a freezer in the surgery area.  This is soooo annoying, such a lot of fuss over a few little popsicles!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't think I have seen any popsicles with gluten.  If that helps.  Is there some kind of juice or Koolaid type thing she would drink?  That would be easier to bring and keep with you.  I am worried someone else might get something you put in the fridge.

LauraTX Rising Star

I would call back up there and speak to someone in dietary.  They are going to be the ones that supply the recovery area.  If the popsicles there are questionable they may be able to order something in and deliver it up for her to take it off you.  The nurse definitely brushed you off.  

 

If it is a small surgery center and with a small staff, call back up there and ask for a charge nurse or surgery supervisor to call you back to discuss it. 

StephanieL Enthusiast

I think it's pretty common for people in this situation to bring food with them. It's just life at this point but it sucks. Hospital dietary was completely clueless when we've had to use them.

snowmom Rookie

I would call back up there and speak to someone in dietary.  They are going to be the ones that supply the recovery area.  If the popsicles there are questionable they may be able to order something in and deliver it up for her to take it off you.  The nurse definitely brushed you off.  

 

If it is a small surgery center and with a small staff, call back up there and ask for a charge nurse or surgery supervisor to call you back to discuss it. 

 

Thanks, that seems like it's worth a shot. maybe we'll get someone who can give us a little more info (though I do take your point, Stephanie,about clueless hospital folks!)

 

We're going to a big Children's hospital. After my post it also occurred to me that we can ask someone on the GI staff to help us track down this info from their colleagues....

Cara in Boston Enthusiast

Perhaps you don't need to bring it from home.  I know our Children's Hospital is in a busy neighborhood with plenty of stores within walking distance.  You could zip out while the procedure is being done and pick something up to put in the freezer.  Or pack those push-up things unfrozen and put them in the freezer when you arrive.  They should be solid in a couple of hours.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.