Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Patient Symptoms When Gluten Is Consumed


Kelsie

Recommended Posts

Kelsie Apprentice

Hi, I hope this doesn't seem like a silly question, but I'm waiting to see my GI specialist and I still have no idea what's wrong with me. I'm curious though if one has celiac disease and gluten is consumed do all patients require emergency care or can the symptoms vary?

Based on my previous posts and my symptoms I feel pretty confident I am either celiac on NCGS, but if I consume bread or gluten I don't always have an immediate severe reaction. Sometimes it's brain fog, a headache the following day that last a day or 2, or puffy eyelids the following day. Other times it's severe diarrhea, cramping etc.

Does this make sense?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Hi, I hope this doesn't seem like a silly question, but I'm waiting to see my GI specialist and I still have no idea what's wrong with me. I'm curious though if one has celiac disease and gluten is consumed do all patients require emergency care or can the symptoms vary?

Based on my previous posts and my symptoms I feel pretty confident I am either celiac on NCGS, but if I consume bread or gluten I don't always have an immediate severe reaction. Sometimes it's brain fog, a headache the following day that last a day or 2, or puffy eyelids the following day. Other times it's severe diarrhea, cramping etc.

Does this make sense?

 

Makes complete sense.  :) Reactions between celiacs can vary hugely. Some of us have a slow reaction, others feel it quickly, and yet others will not have an obvious reaction until multiple exposures have happened. Some react severely and need days off work whereas others feel nothing or just a bit run down, and some swing between the two extremes.

 

I was an undiagnosed celiac for decades and I never required emergency care except when it kicked off a new life-threatening autoimmune problem. I was able to work and function fine - just without comfort.  LOL

Kelsie Apprentice

Makes complete sense.   :) Reactions between celiacs can vary hugely. Some of us have a slow reaction, others feel it quickly, and yet others will not have an obvious reaction until multiple exposures have happened. Some react severely and need days off work whereas others feel nothing or just a bit run down, and some swing between the two extremes.

 

I was an undiagnosed celiac for decades and I never required emergency care except when it kicked off a new life-threatening autoimmune problem. I was able to work and function fine - just without comfort.  LOL

Thanks nvsmom, I'm still trying to wrap my head around everything!

nvsmom Community Regular

Thanks nvsmom, I'm still trying to wrap my head around everything!

 

It really is a weird disease! When something as harmless as a donut can cause migraines, arthritis, cognitive problems and stomach issues - it really does make it hard to get a full understanding of what is going on!

 

Best wishes.  :)

1desperateladysaved Proficient

These types of considerations sound familiar to me, for sure.  My response has also been changing  as I transition gluten free.

 

Dee

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.