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Biopsy Results Are In!

Michelle1

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Michelle1 Rookie
Michelle1
Posted

So I had the biopsy last week and they said they also biopsied my esophagus and stomach because they looked inflamed.  The dr said afterwards that I had scalloping of the duodenum so to definately stop eating gluten.  I didn't get to speak with the Dr. himself just his nurse and she couldn't answer my questions.  I guess I'm trying to see if its possible to figure out from the results if I have had this my whole life or just since I had my daughter 2.5 years ago......??

 

Diffuse villous abnormalities, consistent with celiac disease.

Mild chronic superficial gastritis, no H. pylori.

Esophageal changes consistent with reflux (GERD) negative for Barretts intestinal metaplasia. (YEAH!!!)

 

There is flattening of villi with crypt hyperplasia and chronic inflammation.  Intraepithelial lymphocytes are increased.  This pattern is most consistent with celiac sprue. 

 

 

In total they took 12 biopses..

 

I guess i'm wondering with the words "diffuse" and "chronic" if its possible to tell how bad the flattening of the villi was and maybe if this was a multiple years or just 2.5 years.....

 

Gluten free for 1 week today!!!

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GottaSki Mentor
GottaSki
Posted

Welcome to the club Michelle!

There really is no way to determine how long you have had active Celiac Disease.

Many of us wonder along similar lines and I can tell you as your time gluten-free increases you may find minor health issues or symptoms improve that you never considered might have been caused by Celiac Disease.

Congratulations on your first week gluten-free. The learning curve can be tough, but it gets much easier with time :)

1desperateladysaved Proficient
1desperateladysaved
Posted

Welcome Michelle

 

? length of illness and 1 week of getting better.  Keep on walking.  I am glad for you that you got your diagnosis.

 

Dee

Cara in Boston Enthusiast
Cara in Boston
Posted

Not sure if they can tell how long you have had it.  I know my symptoms all started with my second pregnancy.  Any stress on the body can trigger celiac and pregnancy is certainly a stress.  Coincidently, it is my second son that also has celiac.  

 

Don't forget that all your first degree relatives need to be tested as well - even if they don't have any symptoms.

 

Glad you are on the road to recovery.  Enjoy your good health.

Fenrir Community Regular
Fenrir
Posted

Welcome to the club! Not that I wish this on you , or that it makes you cool but welcome none the less.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Unexpected gluten exposure risk from cultivated mushrooms

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      Unexpected gluten exposure risk from cultivated mushrooms

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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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