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strings

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strings Rookie

My eczema has been its worst for the last few days, where it's starting to blister and very aggravating.

All tests have been negative, I've also been tested for thyroid as my brother has Hashimoto's disease and experienced the same symptoms as me, but I still have no answers after all these years. 

 

This skin condition is extremely frustrating and I've noticed my OCD has been at its highest. What can I do for now? I'm so tired of this crap :(


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1desperateladysaved Proficient

I use to have eczema.  I remember that the MD could give me cream that would take it away, BUT it would come back with a vengeance as soon as I stopped.  I begged to be told what causes it, but it was a complete mystery to them.  My eczema went away in my 20's when I got the nutrients I needed in supplement form and used my own homemade soap.

 

If you haven't been tested for celiac, I would do so.  There are several thoughts out there that eczema is gluten related.  I am not sure if they could biopsy eczema as they do DH, but perhaps someone else will know.  If you want to test for celiac, keep eating gluten until you have a full celiac blood panel drawn and endoscopy if needed.  You must be eating gluten for the tests to be accurate.

 

I hope you find your answers and will soon be feeling better.  Did you have a full thyroid panel?  I got only the TSH which was normal, but the others showed I was borderline low.

 

Hang in there,

 

Dee

BlessedMommy Rising Star

I had a very severe skin rash that the dermatologist said was eczema. Going gluten free has greatly improved my skin.

strings Rookie

I did have a celiac test done and results were negative. All nutrients were at range too. Honestly, I can't remember about my thyroid test, but I think it was TSH. Guess I should ask for a full thyroid panel then. ( I just assumed a thyroid test is a thyroid test).

 

Tried a gluten free diet and dairy free too on a few occasions to which my other symptoms did somewhat subside, but eczema was still present. For now I'm back on a gluten/dairy free diet and hoping it'll calm down.

 

Cheers

cyclinglady Grand Master

Keep a food journal to try to determine what triggers your eczema. It is allergy-related in my family where eggs, nuts and milk protein are the culprit. Triggers asthma in some.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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