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strings Rookie

My eczema has been its worst for the last few days, where it's starting to blister and very aggravating.

All tests have been negative, I've also been tested for thyroid as my brother has Hashimoto's disease and experienced the same symptoms as me, but I still have no answers after all these years. 

 

This skin condition is extremely frustrating and I've noticed my OCD has been at its highest. What can I do for now? I'm so tired of this crap :(


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1desperateladysaved Proficient

I use to have eczema.  I remember that the MD could give me cream that would take it away, BUT it would come back with a vengeance as soon as I stopped.  I begged to be told what causes it, but it was a complete mystery to them.  My eczema went away in my 20's when I got the nutrients I needed in supplement form and used my own homemade soap.

 

If you haven't been tested for celiac, I would do so.  There are several thoughts out there that eczema is gluten related.  I am not sure if they could biopsy eczema as they do DH, but perhaps someone else will know.  If you want to test for celiac, keep eating gluten until you have a full celiac blood panel drawn and endoscopy if needed.  You must be eating gluten for the tests to be accurate.

 

I hope you find your answers and will soon be feeling better.  Did you have a full thyroid panel?  I got only the TSH which was normal, but the others showed I was borderline low.

 

Hang in there,

 

Dee

BlessedMommy Rising Star

I had a very severe skin rash that the dermatologist said was eczema. Going gluten free has greatly improved my skin.

strings Rookie

I did have a celiac test done and results were negative. All nutrients were at range too. Honestly, I can't remember about my thyroid test, but I think it was TSH. Guess I should ask for a full thyroid panel then. ( I just assumed a thyroid test is a thyroid test).

 

Tried a gluten free diet and dairy free too on a few occasions to which my other symptoms did somewhat subside, but eczema was still present. For now I'm back on a gluten/dairy free diet and hoping it'll calm down.

 

Cheers

cyclinglady Grand Master

Keep a food journal to try to determine what triggers your eczema. It is allergy-related in my family where eggs, nuts and milk protein are the culprit. Triggers asthma in some.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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