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Is It A Gluten Problem


sillyacting

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sillyacting Newbie

I have a long list of problems. Diarrhea, constipation, abdominal pain, fatigue, irritability, substantial weight loss, just to name a few. But my question is about my arms. They feel like they are on fire with pins and needles only when they get cold. Is this a celiac symptom?


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1desperateladysaved Proficient

From reading I certainly think this could be celiac.  How about having that tested?  The only things ya got to lose is some blood, and some horrible symptoms. 

 

Wishen you well as you begin your journey.  The diagnosis is the first hurdle, jump it!

 

I can't answer for myself about the pins and needles, so I will leave that one to someone else that had it.

 

Dee

trajana Newbie

I have a long list of problems. Diarrhea, constipation, abdominal pain, fatigue, irritability, substantial weight loss, just to name a few. But my question is about my arms. They feel like they are on fire with pins and needles only when they get cold. Is this a celiac symptom?

 

Check out info on Celiac or gluten + "peripheral neuropathy" and see if it sounds right.  I had a tingling/"asleep"/pin & needles sensation in my fingers pretty frequently before I cut out gluten.

sillyacting Newbie

I just got a gi appointment for june 4. I noticed yesterday that when my 4 year old went potty her stool was very pale and floated. Every symptom I have points me to celiac. I have four kids and fear at least one of them may have to fight this battle with me. Very scared

1desperateladysaved Proficient

You are on the right track learning about it.  It seems overwhelming now, but you'll make your way through it.  You will be very thankful when you feel better.  Hang in there through the start.  The rewards can be great.  Okay?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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