At A Loss; Constant Stomach Pain Continues

[KnightRobby]

I have been Gluten free for about a year and a half now.  I went Gluten free, I did not get better, and went down to 108ibs.  Then I got a diagnosis of severe hayfever and now every time I eat I end up in major stomach pain.  The bloating is out of control.  I am also allergic to everything, including nearly all fruits and veggies.  It has gotten worse since I moved to AZ.

 

I managed to get my weight back up to 160ibs by drinking goat's milk and cranberry juice (yuck), the only 2 things that seem to help a little.  I am also suddenly anemic.  I don't feel like going back to a Celiac Doctor as every Celiac Doctor I have seen is an absolute joke.  It is a money making tagline now.  Anyone who is a doctor is also a Celiac Doctor, which makes it very difficult to find the real Celiac Doctors.

 

I can't eat any prepackaged foods at all, even if they are completely gluten free. They either cause SEVERE stomach pain or some other allergic reaction.  I am avoiding all allergens too but the stomach pain is so persistent.  

 

I have no clue how this happened.  I used to have no problems with gluten until I moved to AZ from IN.

[dilettantesteph]

Welcome to the forum, and I'm sorry that you are having problems.

 

To offer help, more information is needed.  Do you have a celiac disease diagnosis?   Did you get an endoscopy?  Why do you think that you have problems with gluten?  How did you get the severe hayfever diagnosis?

[KnightRobby]

I have an official Celiac Diagnosis through blood work. The biopsies came out to be negative though.  I also have had an endoscopy and I got the hayfever diagnosis from an Allergist.

 

I am also anemic, as diagnosed by my Gastro.  I really don't know if the anemia could be causing a lot of these problems or not...?  Perhaps I should see a hematologist eventually?  

 

The biggest problem I have at the moment is I am surrounded by worthless doctors.  I told my Celiac doctor I was anemic.  He did not believe me, so I ended up in the ER and they diagnosed me.  Every single doctor I have been to has been this way.  

[1desperateladysaved]

I am feeling like I am allergic to all of the foods I added back into my diet.  I get a cramping pain after eating and reactions are lasting 4 days.  One food at a time seems to be the culprit.    Is that the sort of thing you mean?  I felt best (and I still am feeling better and better) while eating foods that I didn't have antibodies to.  I am going back to eating them and new foods that I haven't eaten before.  So far, so good physically speaking.

[nvsmom]

I'm sorry that you are having such a tough time.

 

Have you tried keeping a food and symptoms  journal?  Since you also have allergy issues, you might want to add in an activities and locations portion to the journal as well. Some people findputting it down on paper helps them see the patterns.

 

Have you considered lactose intolerance? about 50% of celiacs are lactose intolerant when diagnosed, and while many regain the ability to digest milk sugars, many do not.  I know for me, milk made me experience a very raw stomach pain until I was gluten-free well over a year; apples and pears do it to me too.

 

Anyway, best wishes. I hope you find answers soon!

[KnightRobby]

It might actually be the milk that could be making everything worse.  I will try without it for a few weeks and see how I do.  I am thinking that is just it.  But yeah, I also experience problems with Apples and pears as well.  I am suddenly unable to eat peanut butter or anything from tree nuts, which is a bummer.  I'd like to be able to buy some prepackaged gluten free foods once and awhile and eat those but it just isn't happening.  I get such a bad reaction from anything at Wal-Mart, etc.

 

And I don't believe it is the one food at a time thing for me.  I know what you are referring to, but I looked into that.  I'm sure a good Celiac doc would've recommended to lose the cheese and milk.  But...but...I love my cheese. lol  Alright, I give in.  I really, really want this stomach to heal.  The pain is constant.  

 

Appreciate the advice.

[nvsmom]

For a good year, and I actually still use it, I used a cheese substitute called Daiya.  It was not good (at all) on sandwiches but when melted into things like eggs, chili, pizza or baked potatoes, it was really rather good.

 

I've started eating some cheese again (small amounts) and I am more liberal with the lactose free types.  Harder cheeses seem to have less lactose in them, but if you are testing yourself for lactose intolerance I would skip all dairy for a while.

 

Coconut is a good substitute for some dairy. Plain coconut yogurt is a good substitute for  sour cream, and coconut milk might work well for you instead of goat milk or almond milk. Earth's Balance is a pretty good butter substitute.

 

I hope you feel better. Let us know how it goes.