Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Since 3/5/14; Update


124chicksinger

Recommended Posts

124chicksinger Apprentice

Since going gluten free, despite negative biopsy and bloodwork, I think that overall I am feeling ... better.  I have had some health blips since stopping gluten, and I think sometimes it would be easiest to blame having inadvertently eaten some gluten.  But, I can't blame gluten for a stomach flu with 101 fever!  

 

I am by and large, feeling better.  Constipation has gradually disappeared, and the D is much less.  This is a great change.  I have lost and kept off 8 pounds.  I am interested to see if this has any effects on thyroid, liver enzymes and the A1C test at my next appointment.  

 

Unfortunately, I have some vasculitis happening, which I wrote about in an earlier post, which can have a gastric component.  The purpura rashes are waxing and waning, but are less severe. 

 

Lastly, though I have been pretty good at avoiding gluten, last week I mistook couscous salad for quinoa salad.  I only recently started eating quinoa, and had never before eaten couscous.  It looked the same to me (I did not cook it).   When I realized my error, I thought this will be an unintentional test for whether my avoiding gluten is a panacea or a placebo.  I wound up with explosive D.  I still intend at some point to eat a very gluten-filled meal as the true test, but honestly, the thought of pizza, pasta, sub, etc. isn't appealing, so I don't know when and what that gluten-filled meal will be. 

 

So for what it is worth, this is my update.

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Good for you! Glad you are feeling better.

124chicksinger Apprentice

Thank you Cycling Lady.  In eliminating gluten, in real life, I feel very alone.  My daughter is sympathetic and my husband goes along with it, but I cannot stop (nor would I) them from ordering the occasional pizza or sub.  I have taken this on for myself, and do much more home cooking than ever, so I can control the gluten. In a small way, they benefit as well since they are getting less gluten.  It has been an adjustment for all of us, for sure.  

 

Again, thank you for your comment.  It does make me feel supported in this, even tho it is an exercise in trying to feel better, and not born of a diagnosis.

cyclinglady Grand Master

Ah, feeling alone. This is why most of us hang around on this forum! My husband is gluten-free, but does not want to talk about it all the time and my best celiac buddy moved out of state. Found an old acquaintance who was recently diagnosed, but it is hard to get together even for lunch because of work and family schedules. This forum is accessible 24/7. So, talk away!

Oh, my husband has been gluten-free for 13 years. After my dx, the house went 99% gluten-free. I was too sick (anemia, fractures, unstable thyroid) to keep vigilant eye on the kitchen. It is much easier than before. Daughter eats her gluten outside the house. Want a croissant? We stop by the bakery. Though she willing eats my home baked gluten-free goods. Says it is better than store bought. Problem now is that I am on a low carb, high fat diet for diabetes (yes....another recent illness) and my daughter hates it. I am no longer baking. Hubby is okay since he is losing weight and improving his cholesterol testing results. He still wants apple cupcakes!

I keep telling myself that it could be worse.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748

    ammocat
    Newest Member
    ammocat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.