Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Get The *right* Bloodwork? Ena Abs


JodyM75

Recommended Posts

JodyM75 Apprentice

I had an EGD the beginning of April (my third) to check out my existing hiatal hernia and test me for Barrett's.  I basically talked the GI doc into doing a biopsy for celiac to, basically, rule it out.  Ha.  The test came back positive for "mild celiac," their words.

 

SO, I went to my primary doc and chatted and requested bloodwork.  I got the results back and I'm not sure I got the right thing.  The sheet says ENA Abs and had the following listed, all came back negative:

 

Anti RNP

Anti Ro

Anti SM

Anti La

 

Help?  There are no numbers listed.  I was still eating a gluten diet when these were taken, but I have been gluten free for a month.  I am guessing I'm a Silent Celiac, because I have no idea what symptoms I have.  Yet.....??

 

I have an appt with my GI tomorrow morning, and I'd like to know a bit more about what this is.  I am still in the process of doing internet searches, but would love to hear from the Celiac Brain Trust, because you guys are awesome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't think those are Celiac blood tests.  Did you go to an MD?

 

Open Original Shared Link

JodyM75 Apprentice

I don't think those are Celiac blood tests.  Did you go to an MD?

 

Open Original Shared Link

 

I'm laughing right now at your question "Did you go to an MD?"  I'm laughing in a good way!!!  The person I saw was a PA and, yes, I don't think she knew much about celiac.  I'm so frustrated with my PCP right now and am really thinking of switching (for many reasons).  The bloods tests she sent me for cost me nearly $600 and I don't think they told me a d$&m thing. 

I found this about ENA Abs:  Open Original Shared Link which says it is for autoimmune disorders.  Another site specifies connective tissue problems.  But I think you are right, I don't think they are celiac tests. 

 

Hm, I wonder what I'm negative for??  :D

kareng Grand Master

I asked about the MD because so many people go to Chiropracters/naturalpaths. They have their own agenda and test that they get referral fees for, etc that have no scientific basis.

nvsmom Community Regular

I had those tests run on me when we were looking into lupus.... It looks like you are negative for lupus anyways. ;)

For celiac disease, you need tTG IgA and IgG, DGP IgA and IgG, EMA IgA, total serum IgA, and possibly the older AGA IgA and IgG tests.

JodyM75 Apprentice

Oh, interesting about the Chiro/naturopath.  Yes, I went to my MD/PA's office.  Again, very frustrated...not just because of the celiac stuff, either.

 

Awesome, no Lupus! 

 

I should have done my homework better and not trusted a schooled professional to be able to do their job.  Ahem.  :rolleyes:

nvsmom Community Regular

I should have done my homework better and not trusted a schooled professional to be able to do their job.  Ahem.  :rolleyes:

 

LOL :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,216
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.