Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help! Bad Stomach Pains


Omck

Recommended Posts

Omck Newbie

Hi all I am new and am feeling glad I have a community of people who will understand my issues better! A bit of background: I used to eat low gluten in my early twenties for health benefits and then after I had my second child, I started suffering extreme lethargy, nausea and headaches. As time went by I was trying to pinpoint the cause but only considered gluten to be a possibility after my mother came over one night and made me white pasta, and I had horrible stomach pains the whole night. It felt like food poisoning without the nausea or diarrhea. I continued to eat gluten occasionally, and probably got cross contaminated a million times, and my health was getting worse. I was experiencing tingling in my extremities, rashes on my elbows, fatigue, head aches, insomnia, flip flops in my stomach, optical migraines (when you see a zig zag patch in your vision field which grows till you can barely see and then you get a huge headache after), brain fog to the point where I felt like I couldn't hold a conversation or make eye contact etc. over this last 2 year period it seems my symptoms were ever changing but the one thing that stayed the same was it only happens when I have gluten. I had the celiac blood test done 2 times but the doc didn't tell me that I had to have it in my system first and I had already been gluten free for a few weeks both times. It seems that I am so sensitive.. One time I bit into a white pasta noodle I was cooking and spat it out immediately and I was sick the next day. My big question for you however, is for the last year I have had about 6-7 unexplained extreme stomach aches. It is excruciating pain above my belly button that normally happens at night and last from 3-5 hours. It feels like the worst food poisoning but without the nausea and diarrahh and I get chills, dizzy and feel dehydrated. Last time it was so bad I went to the hospital and they found that my white blood cells were high but when I did an ultrasound the only thing they found was poly cystic ovary syndrome, but not gall bladder or pancreas issues like my doc suspected. Almost every time I can recall having these stomach aches, I had been glutened within a week before. Does this sound like celiac disease? Has anyone else experienced this? It seems to have some delayed response, as usually the first symtpom is light cramps in the evening, then some insomnia with loud tummy gurgles, then the next day is feel like s$#& lethargy don't want to do anything or see anyone, and finally it's the day after that these stomach aches happen. Please help me if you have any leads whatsoever, my health is so precious to me especially since I have 2 little kids under 4 :( I would do anything to figure all this out.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

your doctor can test you for celiac, but you have to continue to eat gluten for the testing to be accurate.  many of your symptoms could be attributed to celiac/ngci, but they could also be symptoms of other things.  i hope you find some answers :)

nvsmom Community Regular

I would advise seeing your doctor about it and getting tested for celiac disease too. The doctor may have other ideas as to the cause - we're biased around here.  LOL ;)

 

I have had extreme stomach aches that made me feel almost like I was going into shock: dizzy, faint, cold, clammy, etc.  I never did see the doctor about it... it hasn't happened for a few years now.

 

Best wishes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,345
    • Most Online (within 30 mins)
      7,748

    Nana3
    Newest Member
    Nana3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods...
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said...
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary...
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
×
×
  • Create New...