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Negative Blood Tests


cowgirl

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cowgirl Rookie

I was suppose to be tested for the Celiac gene test.

However, they did the celiac disease blood test instead.

I have been gluten-free for just under 3 months now.

Had severe GI symptoms before going gluten-free, also had mal-rotated

intestines that were corrected in March.

After surgery, symptoms improved but were still there just not as bad.

I went gluten-free hoping to find relief. Have had wonderful improvement on

gluten free diet!!

My blood test results reads as follows:

Endomysial Ab, IgA screen had NONE DETECTED

Gliadin Antibody IgG was 0.9 (0.0-29.9 being negative)

Gliadin Antibody IgA was 20.5 (0.0-29.9 being negative)

Reticulin IgA antibody, IFA was <1:5 (<1:5 being antibody not detected)

(don't know what it was just says <1:5)

Now to my question ... it seams to me that the IgA although negitive

is still awful high at 20.5 compared to the IgG being only 0.9.

I knew that being on the gluten-free diet would make the blood tests not accurate,

thats why we ordered the gene test. But, since I have these results I am

now curious with the negative but fairly high IgA reading.

Could that in itself indicate possible Celiac?

Does Anybody have any idea?

Thanks to all who post here, don't know what I would have done the last

few months without this forum.

Any response would be appreciated.


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    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
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      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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