Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Over Paranoia Of Being Glutened.

Serielda

By Serielda
in Coping with Celiac Disease

Recommended Posts

Serielda Enthusiast
Serielda
Posted

So the other day I went out to get new clothing as I needed some, since kicking gluten out of my life, I have dropped  20lbs.  So while shopping my hubby commented hon, why do you keep picking your old size of clothing and I stopped and felt really stupid for my reply, but honestly due to  a phobia of accidently getting glutened I tend to wear clothing that is a bit big on me. Pre diagnosis, and after for a bit, I grew very irked and super annoyed by people thinking I was preggers, and crap, which lead to sarcasim since I can't have kids(that is another story). I am sure many here have had to endure the same nonense, from others on that topic, but still it doesn't stop those feelings. 
While my hubby is very supportive, he was sort of like baby, you still are working at things and it's going to take time to get these jitters and fears to calm down. However his fave gluten related freak out was the night I dreamed I was eating breadpudding with ice cream to wake up flipping out then realizing it was just a dream. Pre diag days I would flip with a chorus of  nom nom nom if it was anywhere near me. He sat up in bed laughing at me stating ummm do you think I'd let you  sit somewhere and freak out on that, to have to  deal with you later flipping out. I admit now it is kind of funny, as I have heard of those kind of dreams, and such but his reaction was priceless.

So does these bizare issues I mentioned above ever really dissist as silly as they sound they are kind of irritants to me.

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueshades Newbie
blueshades
Posted

I think this just means you're very careful. I have dreams where sometimes someone will offer me a donut or i will eat something my mother made for the family like i use to. And once i bite into it, i start screaming at myself, saying this has wheat and i know it so why did i eat it! lol and i would be spitting it out. And it's silly because when i'm awake i know i will definitely not make that kind of mistake in real life. I am very careful and i think it's good we are since it's our health we are risking!

CathyO Rookie
CathyO
Posted

I just had this conversation with my grandson (of all people) yesterday.  He's 12 and lives with us fulltime.  He's seen me unconscious on the bathroom floor, you name it.  He knows.  He is my best "gluten spy" ... "Did you read the label on that? Is there gluten in that?" He has explained Celiac Disease to adult family members who "doubt" my diagnosis.
Bless his little heart.  He worries a lot about me, and I try to help him not worry.  I was diagnosed in February of this year.

 

As we were putting dinner on the table last night (yummy gluten free pasta and steak and veggies), he said "Have you noticed lately that we don't worry about gluten as much as we used to lately? That this is just the way we eat now, and we don't even think about it."

 

I didn't tell him that I have nightmares about eating croissants, and wake up in a cold sweat. For our recent road trip I spent several weeks mapping out our trip and finding appropriate gluten-free places to eat.  The nightmares and "fear" have become a little more manageable with time.  I still buy clothes a little bigger than necessary because of "bloat".  In summer, I find that sundresses are a girl's best friend. 
 

I'm finding that things become easier as more experience in being gluten free is gained.  Knowledge is power.  I read everything I can find, I've bought new cookbooks, and have friends (the good kind!) who have sent me magazines and gluten-free cookbooks with notes of encouragement.

 

If I can do this, so can you !!! 

 

beth01 Enthusiast
beth01
Posted

I wear my new size of clothing but I always keep comfy clothes with me.  Comes in handy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,553
    • Most Online (within 30 mins)
      7,748
    Irene Maresca
    Newest Member
    Irene Maresca
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.