Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Over Paranoia Of Being Glutened.


Serielda

Recommended Posts

Serielda Enthusiast

So the other day I went out to get new clothing as I needed some, since kicking gluten out of my life, I have dropped  20lbs.  So while shopping my hubby commented hon, why do you keep picking your old size of clothing and I stopped and felt really stupid for my reply, but honestly due to  a phobia of accidently getting glutened I tend to wear clothing that is a bit big on me. Pre diagnosis, and after for a bit, I grew very irked and super annoyed by people thinking I was preggers, and crap, which lead to sarcasim since I can't have kids(that is another story). I am sure many here have had to endure the same nonense, from others on that topic, but still it doesn't stop those feelings. 
While my hubby is very supportive, he was sort of like baby, you still are working at things and it's going to take time to get these jitters and fears to calm down. However his fave gluten related freak out was the night I dreamed I was eating breadpudding with ice cream to wake up flipping out then realizing it was just a dream. Pre diag days I would flip with a chorus of  nom nom nom if it was anywhere near me. He sat up in bed laughing at me stating ummm do you think I'd let you  sit somewhere and freak out on that, to have to  deal with you later flipping out. I admit now it is kind of funny, as I have heard of those kind of dreams, and such but his reaction was priceless.

So does these bizare issues I mentioned above ever really dissist as silly as they sound they are kind of irritants to me.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueshades Newbie

I think this just means you're very careful. I have dreams where sometimes someone will offer me a donut or i will eat something my mother made for the family like i use to. And once i bite into it, i start screaming at myself, saying this has wheat and i know it so why did i eat it! lol and i would be spitting it out. And it's silly because when i'm awake i know i will definitely not make that kind of mistake in real life. I am very careful and i think it's good we are since it's our health we are risking!

CathyO Rookie

I just had this conversation with my grandson (of all people) yesterday.  He's 12 and lives with us fulltime.  He's seen me unconscious on the bathroom floor, you name it.  He knows.  He is my best "gluten spy" ... "Did you read the label on that? Is there gluten in that?" He has explained Celiac Disease to adult family members who "doubt" my diagnosis.
Bless his little heart.  He worries a lot about me, and I try to help him not worry.  I was diagnosed in February of this year.

 

As we were putting dinner on the table last night (yummy gluten free pasta and steak and veggies), he said "Have you noticed lately that we don't worry about gluten as much as we used to lately? That this is just the way we eat now, and we don't even think about it."

 

I didn't tell him that I have nightmares about eating croissants, and wake up in a cold sweat. For our recent road trip I spent several weeks mapping out our trip and finding appropriate gluten-free places to eat.  The nightmares and "fear" have become a little more manageable with time.  I still buy clothes a little bigger than necessary because of "bloat".  In summer, I find that sundresses are a girl's best friend. 
 

I'm finding that things become easier as more experience in being gluten free is gained.  Knowledge is power.  I read everything I can find, I've bought new cookbooks, and have friends (the good kind!) who have sent me magazines and gluten-free cookbooks with notes of encouragement.

 

If I can do this, so can you !!! 

 

beth01 Enthusiast

I wear my new size of clothing but I always keep comfy clothes with me.  Comes in handy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...