Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Over Paranoia Of Being Glutened.


Serielda

Recommended Posts

Serielda Enthusiast

So the other day I went out to get new clothing as I needed some, since kicking gluten out of my life, I have dropped  20lbs.  So while shopping my hubby commented hon, why do you keep picking your old size of clothing and I stopped and felt really stupid for my reply, but honestly due to  a phobia of accidently getting glutened I tend to wear clothing that is a bit big on me. Pre diagnosis, and after for a bit, I grew very irked and super annoyed by people thinking I was preggers, and crap, which lead to sarcasim since I can't have kids(that is another story). I am sure many here have had to endure the same nonense, from others on that topic, but still it doesn't stop those feelings. 
While my hubby is very supportive, he was sort of like baby, you still are working at things and it's going to take time to get these jitters and fears to calm down. However his fave gluten related freak out was the night I dreamed I was eating breadpudding with ice cream to wake up flipping out then realizing it was just a dream. Pre diag days I would flip with a chorus of  nom nom nom if it was anywhere near me. He sat up in bed laughing at me stating ummm do you think I'd let you  sit somewhere and freak out on that, to have to  deal with you later flipping out. I admit now it is kind of funny, as I have heard of those kind of dreams, and such but his reaction was priceless.

So does these bizare issues I mentioned above ever really dissist as silly as they sound they are kind of irritants to me.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueshades Newbie

I think this just means you're very careful. I have dreams where sometimes someone will offer me a donut or i will eat something my mother made for the family like i use to. And once i bite into it, i start screaming at myself, saying this has wheat and i know it so why did i eat it! lol and i would be spitting it out. And it's silly because when i'm awake i know i will definitely not make that kind of mistake in real life. I am very careful and i think it's good we are since it's our health we are risking!

CathyO Rookie

I just had this conversation with my grandson (of all people) yesterday.  He's 12 and lives with us fulltime.  He's seen me unconscious on the bathroom floor, you name it.  He knows.  He is my best "gluten spy" ... "Did you read the label on that? Is there gluten in that?" He has explained Celiac Disease to adult family members who "doubt" my diagnosis.
Bless his little heart.  He worries a lot about me, and I try to help him not worry.  I was diagnosed in February of this year.

 

As we were putting dinner on the table last night (yummy gluten free pasta and steak and veggies), he said "Have you noticed lately that we don't worry about gluten as much as we used to lately? That this is just the way we eat now, and we don't even think about it."

 

I didn't tell him that I have nightmares about eating croissants, and wake up in a cold sweat. For our recent road trip I spent several weeks mapping out our trip and finding appropriate gluten-free places to eat.  The nightmares and "fear" have become a little more manageable with time.  I still buy clothes a little bigger than necessary because of "bloat".  In summer, I find that sundresses are a girl's best friend. 
 

I'm finding that things become easier as more experience in being gluten free is gained.  Knowledge is power.  I read everything I can find, I've bought new cookbooks, and have friends (the good kind!) who have sent me magazines and gluten-free cookbooks with notes of encouragement.

 

If I can do this, so can you !!! 

 

beth01 Enthusiast

I wear my new size of clothing but I always keep comfy clothes with me.  Comes in handy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.