Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Over Paranoia Of Being Glutened.


Serielda

Recommended Posts

Serielda Enthusiast

So the other day I went out to get new clothing as I needed some, since kicking gluten out of my life, I have dropped  20lbs.  So while shopping my hubby commented hon, why do you keep picking your old size of clothing and I stopped and felt really stupid for my reply, but honestly due to  a phobia of accidently getting glutened I tend to wear clothing that is a bit big on me. Pre diagnosis, and after for a bit, I grew very irked and super annoyed by people thinking I was preggers, and crap, which lead to sarcasim since I can't have kids(that is another story). I am sure many here have had to endure the same nonense, from others on that topic, but still it doesn't stop those feelings. 
While my hubby is very supportive, he was sort of like baby, you still are working at things and it's going to take time to get these jitters and fears to calm down. However his fave gluten related freak out was the night I dreamed I was eating breadpudding with ice cream to wake up flipping out then realizing it was just a dream. Pre diag days I would flip with a chorus of  nom nom nom if it was anywhere near me. He sat up in bed laughing at me stating ummm do you think I'd let you  sit somewhere and freak out on that, to have to  deal with you later flipping out. I admit now it is kind of funny, as I have heard of those kind of dreams, and such but his reaction was priceless.

So does these bizare issues I mentioned above ever really dissist as silly as they sound they are kind of irritants to me.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueshades Newbie

I think this just means you're very careful. I have dreams where sometimes someone will offer me a donut or i will eat something my mother made for the family like i use to. And once i bite into it, i start screaming at myself, saying this has wheat and i know it so why did i eat it! lol and i would be spitting it out. And it's silly because when i'm awake i know i will definitely not make that kind of mistake in real life. I am very careful and i think it's good we are since it's our health we are risking!

CathyO Rookie

I just had this conversation with my grandson (of all people) yesterday.  He's 12 and lives with us fulltime.  He's seen me unconscious on the bathroom floor, you name it.  He knows.  He is my best "gluten spy" ... "Did you read the label on that? Is there gluten in that?" He has explained Celiac Disease to adult family members who "doubt" my diagnosis.
Bless his little heart.  He worries a lot about me, and I try to help him not worry.  I was diagnosed in February of this year.

 

As we were putting dinner on the table last night (yummy gluten free pasta and steak and veggies), he said "Have you noticed lately that we don't worry about gluten as much as we used to lately? That this is just the way we eat now, and we don't even think about it."

 

I didn't tell him that I have nightmares about eating croissants, and wake up in a cold sweat. For our recent road trip I spent several weeks mapping out our trip and finding appropriate gluten-free places to eat.  The nightmares and "fear" have become a little more manageable with time.  I still buy clothes a little bigger than necessary because of "bloat".  In summer, I find that sundresses are a girl's best friend. 
 

I'm finding that things become easier as more experience in being gluten free is gained.  Knowledge is power.  I read everything I can find, I've bought new cookbooks, and have friends (the good kind!) who have sent me magazines and gluten-free cookbooks with notes of encouragement.

 

If I can do this, so can you !!! 

 

beth01 Enthusiast

I wear my new size of clothing but I always keep comfy clothes with me.  Comes in handy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

    3. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.