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I Gained Weight!


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ceceliac Apprentice

Hello. Is it normal to gain weight even if im not strictly gluten free? i dont have a diagnosis of celiac disease and it very hard for me to follow a strict gluten free diet because i live with my mother, and even though she now believes me, thinks i'm exagerating with the cc.. so im not strictly gluten free. I used to have diarrhea 15+ times a day, and had tons of symptoms that improved almost completely (i think not completely because of the cc)

The thing is: i gained weight!! i'm 5'7 and when i was sick i was weighting 110lbs, now im in 136,5!! i gained 26,5 lbs, i'm happy cuz i think i was skinny but is this normal considering im not strictly gluten free? should i check my thyroid??

 


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LauraTX Rising Star

Generally, people who have had bad damage from untreated Celiac do not absorb what they need from their food, and that can lead to low weight.  Once you start healing and properly absorbing things, if you had that going on, you definitely can gain weight.  If it continues or bothers you too much, just try to focus on overall healthy eating as you continue to heal.  A lot of the direct gluten-free substitutes are pretty unhealthy, so you can try limiting those if you are indulging in them now.

 

However, on the healing aspect... if you had such severe symptoms that would make one believe you probably had Celiac, and are now healing up and feeling better a bit, the only way you are going to feel 100% better is to be strictly gluten-free.  I understand that your life circumstances are not the most conducive to that right now, but I urge you to make it a priority when you feel it is able to be done.

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      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
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