Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Might Have Celiac Or Gluten Sensitivity...but

Mileena

Recommended Posts

Mileena Newbie
Mileena
Posted

I've only been gluten free 3full days. I was throwing up, nauseas, depressed, had diarrhea, had brain fog, gas, bloating, etc. and it had been getting worse. I was eating a lot more gluten At the time. Pretty much everything I ate. So I cut it out of my diet as a test. After 3days on the fourth day I ate a cookie without reading the ingredients. I totally didn't think about it. It's main ingredient ended up being enriched wheat flour. 2 hours later I was feeling extremely nauseas and kept going number 2 every few minutes. Then I had anal leakage and started vomiting violently. I still at this moment feel terrible. And apparently now I have a headache. I am prepared for a Terrible night.

My issue is my doctor never believes me about anything and seems to always be against me. The other doctor their knows my history (i have depression) and literally tried to mom me with discipline and judgments so not the good kind of moming. I'm afraid neither of them will believe me or help me. I'm almost 19. Have never felt well all my life. Only recently has it gotten worse.

What do I say to my doctor to get her to understand? HOW should I say things?

My therapist believes me and really thinks gluten free Is good for me and so does my mom. My dad... Wellhe doesn't give a flying flip about the subject.

I would like to be clear that most of the vomiting has been me making it happen. I just feel so sick I can't take it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

Go back to eating gluten, ask for a Celiac panel to be run--all of the tests and see if you are or are not Celiac.  If they won't run the tests, go to a private lab and ask for them to run the tests.  That way you will know one way or another.  The tests are not accurate if you are not eating gluten at the time.

BlessedMommy Rising Star
BlessedMommy
Posted

Yep, I agree with the above. Get a new doctor that will listen to you. If that fails, self-pay for celiac tests at a private lab. It's worth it to know if you truly have celiac or not. Good luck!

Georgia-guy Enthusiast
Georgia-guy
Posted

Mileena, I can definitely understand your frustrations with the doctors...I had the same situation with them. I ended up having to go to a private lab myself and get the tests run out of pocket (it was pricy, but compared to my medical bills not knowing what was going on it was definitely worth it to get an answer). Have you asked your therapist to speak with your regular doctor though? Maybe if your doc heard it from another medical professional they will be more likely to at least do the tests (they don't have to believe you to do them, but they do have to feel like it's worth their time, and the therapist may be able to convince them of that).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,891
    • Most Online (within 30 mins)
      7,748
    JeniferT
    Newest Member
    JeniferT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      The early days are often tricky for the newly diagnosed.   There were times I thought I'd never feel better, but it just takes some people longer than others.   Hang on in there, and keep posting with any questions as they occur or if you need any encouragement.
    • Aphrodite
      nuts.com -- no longer Celiac safe?

      By Aphrodite · Posted

      Thank you, Scott, for sharing the article. I’ve been puzzled by products with gluten-free certifications that also include allergen disclosures stating the product is processed in facilities that also process wheat. It appears industry has moved on. I have little, if any, trust left in the certifications and labeling.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Yea ... you're probably right.  I think I have been in a sort of denial about how bad this condition is. I thought it would be easier to deal with it.  It is clearly NOT.  Reading different posts on this forum over the past few weeks has helped me come to terms with that a bit, that this is a tough disease to live with and it takes some very serious steps to manage.  Several people mention AIP and it is helping me to think of myself as a person with an autoimmune disease, rather than a person who can't eat gluten.  That's making me take it more seriously and I think I need to do that if I'm going to get out of this loop I'm in where I just eat / drink foods that make me sick and I just battle through it week after week.  Its easier for my husband to see its damage than for me to see it in myself.  He reminded me the other day when I told him that I thought I ate something again that caused me to have a bad day the next day, and he says "you've been having a lot of bad days lately."  I've got to do something to break out of this pattern and so anyway yea I appreciate the suggestion to heal the gut first.  That makes total sense.
    • Zuma888
      Struggling to get into a good pattern

      By Zuma888 · Posted

      I really recommend you go on AIP to heal your gut first, and then reintroduce foods one by one...
    • Rogol72
      Purposefully Glutening Myself?

      By Rogol72 · Posted

      Hey @annamarie6655, I think we've all glutened ourselves during the learning process of what it takes to be truly gluten free. Don't be hard on yourself. You're not glutening yourself purposefully ... it takes time to figure it all out. You should stand up for yourself and advocate for yourself at all times. The family dynamic can be very difficult for us Coeliacs. It may be worth mentioning that Coeliac Disease is genetic and runs in families. And any of them could develop Coeliac Disease in the future ... though that may be a difficult conversation to have. It was for me, but at least my conscience is clear! It's ok to be grateful but not overly so. I would tell them that it's a steep learning curve and I'm trying to figure out a major lifestyle adjustment to preserve my health now and into the future. If it makes you feel any better, I have a sibling who thinks the dinner table is their own personal buffet and dips into the food of whoever is sitting opposite or adjacent without asking for permission ... which is extremely rude. No regard for cross contamination or poisoning my food with gluten. Despite my diplomatic efforts in asking that sibling stop it and explaining the consequences of a crumb of gluten getting into my body, it keeps happening. At family dinners and at restaurants, I now sit at the opposite end of the table well out of arms reach of that sibling. At another siblings 60th BBQ birthday recently, I was trying to assess a safe place to cook my homemade burger having brought my own food .... I was attacked by an in-law who said "there's no place safe to cook just use the BBQ". I stood my ground and asked for a clean frying pan to cook my burger on the cooker. If you live in a city, you might be able to find a support group or make a new Coeliac buddy in a gluten-free Cafe of Breakfast Bar. There's lots of people on Instagram and Tiktok who are Coeliacs that arrange meet-ups. And there's several Coeliacs running podcasts on Spotify.
×
×
  • Create New...