Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Might Have Celiac Or Gluten Sensitivity...but


Mileena

Recommended Posts

Mileena Newbie

I've only been gluten free 3full days. I was throwing up, nauseas, depressed, had diarrhea, had brain fog, gas, bloating, etc. and it had been getting worse. I was eating a lot more gluten At the time. Pretty much everything I ate. So I cut it out of my diet as a test. After 3days on the fourth day I ate a cookie without reading the ingredients. I totally didn't think about it. It's main ingredient ended up being enriched wheat flour. 2 hours later I was feeling extremely nauseas and kept going number 2 every few minutes. Then I had anal leakage and started vomiting violently. I still at this moment feel terrible. And apparently now I have a headache. I am prepared for a Terrible night.

My issue is my doctor never believes me about anything and seems to always be against me. The other doctor their knows my history (i have depression) and literally tried to mom me with discipline and judgments so not the good kind of moming. I'm afraid neither of them will believe me or help me. I'm almost 19. Have never felt well all my life. Only recently has it gotten worse.

What do I say to my doctor to get her to understand? HOW should I say things?

My therapist believes me and really thinks gluten free Is good for me and so does my mom. My dad... Wellhe doesn't give a flying flip about the subject.

I would like to be clear that most of the vomiting has been me making it happen. I just feel so sick I can't take it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

Go back to eating gluten, ask for a Celiac panel to be run--all of the tests and see if you are or are not Celiac.  If they won't run the tests, go to a private lab and ask for them to run the tests.  That way you will know one way or another.  The tests are not accurate if you are not eating gluten at the time.

BlessedMommy Rising Star

Yep, I agree with the above. Get a new doctor that will listen to you. If that fails, self-pay for celiac tests at a private lab. It's worth it to know if you truly have celiac or not. Good luck!

Georgia-guy Enthusiast

Mileena, I can definitely understand your frustrations with the doctors...I had the same situation with them. I ended up having to go to a private lab myself and get the tests run out of pocket (it was pricy, but compared to my medical bills not knowing what was going on it was definitely worth it to get an answer). Have you asked your therapist to speak with your regular doctor though? Maybe if your doc heard it from another medical professional they will be more likely to at least do the tests (they don't have to believe you to do them, but they do have to feel like it's worth their time, and the therapist may be able to convince them of that).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.