Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Questions

netwirth57

By netwirth57
in Coping with Celiac Disease

Recommended Posts

netwirth57 Newbie
netwirth57
Posted

Hi,

I was just diagnosed as having Celiac disease 4 days ago. I think I can cope with the new diet but I am overwhelmed :o about the restrictions on shampo, touthpaste, mouthwash, etc.. Is this really something to worry about or isn't only something that the most sensitive individuals need to be concerned with? My doctor never mentioned changing your shampo.

Alos what are the bast on line shopping sites? I would really like to find a site that I could trust that would have all the products I need.

Thanks for your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted
Hi,

I was just diagnosed as having Celiac disease 4 days ago.  I think I can cope with the new diet but I am overwhelmed  :o about the restrictions on shampo, touthpaste, mouthwash, etc..  Is this really something to worry about or isn't only something that the most sensitive individuals need to be concerned with?  My doctor never mentioned changing your shampo. 

Alos what are the bast on line shopping sites?  I would really like to find a site that I could trust that would have all the products I need.

Thanks for your help.

<{POST_SNAPBACK}>

I have not found a site that contains everything one needs. Of course it depeneds on where you reside. In the US you seem to have much availability to good products than where I live. In Canada if I lived in Vancouver or Toronto or Montreal then my availability would increase to more things however, it would be a good idea to find your local Celiac Association Chapter, they have tons of good information. There is a lot of great information and recipes on this site also.

It can seem like a daunting chore going gluten-free but at least you have great support here and with the local Celiac Chapter.

Best of luck to you.

Rachel--24 Collaborator
Rachel--24
Posted

Yes, you should be concerned about any product containing gluten that can possibly get into your mouth. Lotion, shampoo, cosmetics (if you're female)...these all can easily get into your mouth. Toothpaste, mouthwash and lipstick all should be gluten-free. The only toothpaste (that I know of) that *isn't* ok is Sensodyne. Also don't lick envelopes or stamps. :o

KaitiUSA Enthusiast
KaitiUSA
Posted

The reason why products matter is because they can easily get into your mouth.

Think about it..if you wash your hands with gluten containing soap and then prepare your food you cross contaminate.

With shampoos, it can easily slide down your face in the water and how often do you touch your hair throughout the day without even thinking about it...that gets gluten on your hands.

With makeups it is the same thing..you touch your face maybe subconsciously to rub your eye or something and then its now on your hands...makeup is obviously the most important because that's right on your mouth

With nail polish biting your nails or making food can make it chip off and get traces in there.

Hairsprays and perfumes can get into your digestive tract through airborne particles.

Every angle needs to be looked at because every little bit can and will damage you.

If you would like to email me I can send you some lists that would help with guidelines of products and all that kind of stuff.

jma Newbie
jma
Posted

Hi! I was also just diagnosed too. My brother was diagnosed 2 months ago and wanted me to get tested because of my symptoms. Unfortunately I started the diet before I contacted the doctor and now he is reluctant to run the tests. he wants me to go gluten free. He feels I do have celiac disease since my Dad and my brother has it. It's overwhelming. My question is is there a list for gluten free products like toothpaste, mouthwash, lotions, etc. or does it just involve research of the individual companies. Any help would be appreciated for us new ones!

netwirth57 Newbie
netwirth57
Posted
  • Author
Hi!  I was also just diagnosed too.  My brother was diagnosed 2 months ago and wanted me to get tested because of my symptoms.  Unfortunately I started the diet before I contacted the doctor and now he is  reluctant to run the tests.  he wants me to go gluten free.  He feels I do have celiac disease since my Dad and my brother has it.  It's overwhelming.  My question is is there a list for gluten free products like toothpaste, mouthwash, lotions, etc.  or does it just involve research of the individual companies.  Any help would be appreciated for us new ones!

<{POST_SNAPBACK}>

Hi, it's only been 1 week since i have been diagnosed so I don't know much but I have yet to find a site or materials listing non food products with Gluten. So I guess we are on our own and need to call the manufacturers. I did learn the hard way that cross contamination is for real. I was feeling better because I hadn't eaten gluten in a few days and while at work I had some soynuts. Within 20 minutes I had cramps and bloating. When I got home I looked on the label of the bag and saw that it is processed on the same equipment that processes wheat products. Before that I didn't believe that cross contamination was something that I need to worry about. lesson learned

Good luck on your new life style.

lizzy Apprentice
lizzy
Posted

hi all

i got my help from the gluten free bible and i also down loaded the food and drug list from this web site which as over 4000 food items on and it help me no end , i found things i could eat cheaper than just the ones that state they are gluten free. .like newmans pasta sauce and emerils also. hope this helps liz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


laurelfla Enthusiast
laurelfla
Posted

lizzy, do you know if on those lists you downloaded the whole cross contamination issue is taken into account? i have thought about getting them but held off for a little bit to save some money. thanks!

Rachel--24 Collaborator
Rachel--24
Posted

I'm pretty sure the Dephi list has non-food items on it. Its always best to call and verify though. Alot of people have posted on here about innacurracies in The Gluten Free Bible so I dont know if I would trust whats written in that book.

Carriefaith Enthusiast
Carriefaith
Posted

Suncreen is something else that we have to watch out for. I got sick from suncreen that had oat extract in it.

My doctor never mentioned changing your shampo.
yeah... unfortunatley that is something that we usually have to learn on sites like this or the hard way (actually getting glutened) <_<
mndude Newbie
mndude
Posted

things to keep in mind

glue on envelopes stamps

soaps shampoos

make up

house hold cleaners

medicine/vitamins

laundry soap etc

kissing others

sharing a phone or keyboard with others

we should make a list for new people of all the stuff (mistakes) that we went thru that isn't about gluten-free food

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ? I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet. Rebound muscle pain so intense ...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    3. dixonpete
      0

      Inoculation and video development

    4. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    5. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,845
    • Most Online (within 30 mins)
      7,748
    Mack22343
    Newest Member
    Mack22343
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Oh my goodness medication causing pain !!!!

      By Colleen H · Posted

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.