Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until I Would See Some Results?


loveday

Recommended Posts

loveday Newbie

As I stated in a previous post (the "Am I allowed to swear" one), we're trying the gluten-free diet to see if it helps with ds's delays. He's barely two, has gross and fine motor skill and speech delays. I've glanced through other posts here and see that there are other moms who have dealt with delays.

My question is, when would I see results if indeed gluten is the issue? A month? Two months? Six months? And at what point if I see no significant results do I decide the diet isn't worth it anymore and that this experiment has failed?

For those who have seen results, how significant were they? Is it like one week they're not talking and a couple weeks later they have 20 new words? Or is it slower than that? And how can you tell for sure it's a gluten thing instead of normal development (or as normal as it can be with a kid with delays)?

Thanks!

Meg

mom to Ethan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I will leave this question for the "Mom's"...since I have no experience there. I think however that you *know* your son better than anyone does and if the changes were due to his new diet...I think you will just know...it should be obvious.

Jnkmnky Collaborator

My son was two months past turning three. He had baby babble going on..at best. He spoke in his first complete sentence 4 days after going gluten free. He was a different child. I didn't know about peptides back then or that kids with autism can benefit from a gluten and casein free diet for the same reasons. *leaky gut, peptides, opiate-like drugged effect*. Clearly, my child was "doped" for the first three years of life. He woke-up after only four days gluten free. He also had fine motor and gross motor delays. He's still in speech therapy at age 7. Last year he was evaluated for memory problems... was decided he fell into the low end of normal, so the teacher was advised to work with him as it IS a minor problem. His gait is still that of a child a year younger than his age of 7. I've held him back one year, and he's exactly where he needs to be. He lost a year to gluten poisoning.

Guest nini

my daughter was delayed with walking and other gross motor skills, she also had major behavioral issues.

Her digestive symptoms disappeared within 3 to 4 days and within the next 6 months she was catching up with all of her developmental skills. Now at 5 you can not tell she was ever sick or delayed in any way.

e&j0304 Enthusiast

My daughter is also suffering from some gross motor delays in development and is clumsy and uncoordinated. I just recently found out that this could be related to her gluten intolerance. (She had other symptoms that I felt were more severe and that's what led me to believe she had a gluten problem).

We have noticed some improvements in her gross motor skills and coordination, but it has been a much slower improvement than we saw in other areas (appetite, distended tummy, hair loss, etc.)

At first I thought she was just getting more coordinated because I stuck her in a tumbling class, but now that I know a little about gluten ataxia, I feel that she may have had a mild case.

I think that everyone is different, however and I don't know how long you could expect the diet to take to work. I know that I was going to give it 2 months for Ella to see improvemen and I didn't have to wait that long.

Good luck to you!

taweavmo3 Enthusiast

Just wanted to add one more thing to my novel of a post under your first thread! I was told so many times that my daughter would catch up...I got so tired of hearing that, I felt like screaming. Then I heard "well, she's a second child, her brother probably talks for her". Then I heard that we probably aren't talking to her enough...or that we aren't working with her enough, etc. Blah, blah, blah.

It may just be normal development like you said, but it may not. I think it's great that you are being proactive, and are willing to try this diet for your child. It may not work, but if it does help...how awesome would that be??!! And, don't ever stop searching for answers....you are your child's best advocate! Okay, that's really it, I'm off my soapbox now. Take care, and keep us posted.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.