Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Newb On Gluten This Month For Testing

edgymama

Recommended Posts

edgymama Apprentice
edgymama
Posted

My story is like many from what I have read, I am 36 and have had seasonal allergies all my life, mom claims I was anemic off and on and had allergies to dairy and soy as a baby (have had it all my life though so I don't think those cause issues). IN 2003 I believe it was they gave me some blood test and said I didn't have celiac and I had IBS (alternating C and D). Along the way lots of other things have stood out to me especially fatigue, and increasing anxiety the past few years. I just figured that I had an IBS reaction to MSG since it seemed every time I had take out or can soup etc...I was in the bathroom within about 30 minutes of eating it. 

 

More reading got me to thinking that perhaps the test they did back in 2003 wasn't all that great and maybe I do have at least a gluten sensitivity but never pursued it just dealt with it. In July this summer I had HORRID bloating occur that lasted almost a week. I felt as if I was on my due date with a child type bloating! I went to the doctor and they ran some tests for a bacteria and UTI/Bladder infections and an ultrasound, all came back normal. I let them know I was still having issues and wanted answers. They sent me to a surgeon because they found polyps on my gall bladder. I KNEW it was not my gall bladder and luckily the surgeon listened to me and said he was in total agreement that the tiny polyps they saw were NOT the cause and were not anything they needed to be concerned about. 

 

Got in with a GI doctor and although I just met with the NP she heard my heart murmur straight away (impressive as so many doctors miss it on me) then she ordered me to eat gluten this month (I had been off it since the bloating issue so maybe a month off of it). I go for my blood tests on October 25th and that day cannot come soon enough. Actually the day cannot come soon enough for me to go off gluten again I should say! 

 

The month I was off of it I was regaining energy, I only had D maybe once or twice which was linked to panic attack over my 4 year old (she has asthma and I am highly wondering if she too doesn't have gluten issues!). I just felt better. Oh and the biggest thing for me, I wasn't hungry! See I am overweight (actually obese by today's standards being 5'2 and in the 180's currently) and I am pretty much always open to eating and the month off of gluten I was finding myself not snacking during my normal snack attack time (right after work). 

 

I know now that even if my tests are negative that I am going off gluten 100% as the proof was in the pudding with how much better I felt!!! 

 

Oh and now with being back on it for only 2 weeks so far I am bloated, my stomach is almost always gassy, my eyes have horrible bags under them even though I am getting a decent amount of sleep, my tummy just aches almost daily, the brain fog is bad, and I just feel swollen everywhere not just my stomach! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SuzLin Newbie
SuzLin
Posted

I tested positive for celiac and still have issues. One thing I've read a lot about is intestinal yeast overgrowth. I read some tips for minimizing this and am going to try. I too had polyps visible in my endoscopy, but in my stomach. They came back totally benign, but consistent with inflammation from celiac.

SuzLin Newbie
SuzLin
Posted

Oh....My insane hunger went away after being gluten free too. I used to get "episodes" where I thought I had low blood sugar. It was awful.

edgymama Apprentice
edgymama
Posted
  • Author

Oh....My insane hunger went away after being gluten free too. I used to get "episodes" where I thought I had low blood sugar. It was awful.

Good glad I am not alone! I am having it like crazy today! Only a few more weeks hopefully......

cyclinglady Grand Master
cyclinglady
Posted

Hang in there! The weeks will fly by and you will be glad that you did it! It will be nice to have a definitive answer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.