Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Next Steps For Husband?

peppyking

Recommended Posts

peppyking Apprentice
peppyking
Posted

My three year's blood tests showed high levels of antibodies on all celiac tests, and we are awaiting her biopsy results (taken today). My husband seems to be very symptomatic with cramps, diarrhea, gerd and brain fog. However, his blood tests were normal. He was on "gluten lite" for a 2-3 weeks before the blood tests, not no-gluten but definitely reduced with occasional cheats. With the research we have done since my daughter's blood tests, I understand that his dietary change could have led to a false negative. Should he go back on gluten consistently and retest or do a biopsy? Should he just go gluten free?  (as we are now officially gluten free inside our house, for my three year old) His preference is to just go gluten-free 100%. My concerns are that he might be inconsistent without a sure diagnosis. Further, my thinking is that if he does have celiac disease, it would resolve some of his related medical issues with time, and may impact how he chooses to treat those things now.

 

For example, his GI surgeon wants to proceed with surgery for GERD, some type of metal sphincter, as that existing damage will still be there even if GERD improves due to no-gluten. Is that true? Or might some of the damage improve in time with a gluten free diet?

 

So confused and not sure where to start.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

What are his numbers and which tests did the run?  Define "gluten light".  You just need to have about a piece of bread a day for the tests to register.

mamaw Community Regular
mamaw
Posted

You know  your  husband  so if  you  think  he  would  cheat  without  knowing  for  positive testing  then  by all means  I  vote  for  him  to  eat  a loaded  full gluten diet  for  at  least  a month then  retest.... He  should  be  consuming  as  much  gluten as  he  can for  testing....&  if  it  were  me  I would  not  do the  surgery  until after  his  gluten testing  is done  as  he  may not need the  surgery  at  all....

Another  thought  is  he  could be  NCGI  & there  is no test  at  the present  time  for  that  just  an elimination diet for  at  least  three  months.....so  he  actually  could  do this  either  way  but  still  would not  have   the  knowledge  of  knowing  for  positive  if he is celiac.. if he chose the  elimination  plan....

Solandra Rookie
Solandra
Posted

I'd have to agree with more testing! Since I'm not really sure of mine, I'm eating gluten again and getting retested, too. I think it would be so much easier to be sure, otherwise, he could be like me and be like, "WELL I really want that ____ and since I'm not sure, I might as well..." It's not the easiest thing to do 100% without having a good reason.

BlessedMommy Rising Star
BlessedMommy
Posted

Yes, I vote for gluten challenging and retesting too. I manage to be strict on my diet with no diagnosis, but then again, I have dangerous symptoms. If someone had only mild symptoms, cheating could be a lot easier.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,850
    • Most Online (within 30 mins)
      7,748
    TonyP27
    Newest Member
    TonyP27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.