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Fibromyalgia

w8in4dave

By w8in4dave
in Related Issues & Disorders

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w8in4dave Community Regular
w8in4dave
Posted

I was just DX'd with fibromyalgia, Is it pretty common among Celiacs?? I wouldn't wish it on my worst enemy! hurts to pick up a tea cup!

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cyclinglady Grand Master
cyclinglady
Posted

So sorry to hear that. My Mom has had it for 15 years. I know it is very painful and frustrating as the pain moves around and never makes any sense.

hrenee101 Newbie
hrenee101
Posted

I've been wondering the same thing also. I've had times where i can't even lift 2 lbs without feeling like it weighs 10 or 20 lbs. My dr referred me to a rhuemotologist who said that she did think i had fibromyalgia and she wanted to run more test to rule out other things and that's how i got diagnosed with celiac also. I always had the symptoms for both since i was little but its been a hard couple months, I got sick in September and have been dealing with it severe symptoms of both since then. 

nvsmom Community Regular
nvsmom
Posted

I had arthritis like symptoms, that would come and go, which sounded a lot like that.  I would get fatigues, flusih, and then it would hit for a few weeks to months.  It would get pretty severe to the point where scissors and pens were pretty hard to use and there was very little strength in the affected joints.  It got better gluten-free but it was my symptoms that took the longest to improves.  After two years gluten-free it is mostly gone. There was very little improvement in the first year gluten-free, I'm afraid... But that could be just me

 

Best wishes

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Oh my I never felt this kind of pain before. I have been gluten-free for over a year. This just started right about two weeks before Thanksgiving I was driving home from my step daughters. It was icy and snowing out and when I went over a high level bridge I was shaking un controllably... It reminded me of when I leave my dog alone, He has separation anxiety, so yea I was shaking. Ok so I get home and things are good , But doesn't take long a few days and Hubbs and I are headed up north. I woke up with such bad pain, I blamed it for sleeping wrong, but later figured it was something eles going on. I had a bad cold blamed it on that. But still It hurts so bad. Gets better at night. Kinda ,It is crazy! It does move around! I have always prided my self for not having head aches and bam! Started having them. I do have another auto immune disease So once you have one your likely to have another.So I hear anyway, I think Fibro is an auto immune. Cannot swear to it. Is it common for Celiacs?? Just curious about that. I guess It doesn't matter Dr. Says it's my problem. I won't take all the stuff they have out there for it. I will suffer thru. Hopefully the weather is good and I can deal. It is what it is! Just like Celiac and everything eles! Deal with it!

cyclinglady Grand Master
cyclinglady
Posted

Gentle exercise is helpful for those with fibromyalgia. It can help with depression too -- because it is really depressing to have it! My mom's weirdest symptom is feeling cold inside and piling on the blankets does not help. Happens at the same time of day (around noon). She gets most of her work done first thing in the morning. Naps help as well.

I do not recommend Lyrica. She took that med for two months and gained 30 pounds! That is one of the side effects. Another is suicide. She figured if she gained that much weight that fast, she might end up killing herself. She stopped that medication. She mostly uses over-the-counter pain meds and heating pads or the kind you heat in the microwave.

ravenwoodglass Mentor
ravenwoodglass
Posted

I don't know if it will help you but my fibro symptoms seemed to be linked to soy. After I dropped soy the fibro issues resolved.

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    • knitty kitty
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    • lizzie42
      Son's legs shaking

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    • lizzie42
      Son's legs shaking

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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