Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Meds From Va?

GlutenGator

Recommended Posts

GlutenGator Newbie
GlutenGator
Posted

I am looking for anyone with experience using the VA for gluten-free meds. My VA Primary Care Provider sends my prescription requests to the pharmacy department asking for gluten-free formulations, but I have zero confidence in trusting the pharmacy techs to actually be certain what they are sending me. I am specifically concerned about thyroid medication. Currently they are sending me Synthroid by AbbVie in .112 mg.

 

Thanks much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

You need to contact the manufacturer.  The techs fill it with what they have unless specified a brand. You aren't suppose to switch between brands with Synthroid anyways because it's such fine dosing that it can very enough between manufacturers to cause issues. 

 

In other words, if you want a specific brand your Dr. needs to specify that ( or you'll never be assured they get the same brand each time.)

Lisa Mentor
Lisa
Posted

This might be helpful.  Scroll down to find a list of gluten free drugs/meds by alphabetical listing:

 

Open Original Shared Link

 

If you don't find it there, your phamacist, not the techs, can contact the manufacturer for you, if you say 'please'.  :rolleyes:

LauraTX Rising Star
LauraTX
Posted

Another technique I use at my pharmacy is having them add a note to my file that pops up when the Pharmacist is verifying, that says "Please consult with patient before filling an existing RX with a new NDC.  Please keep same manufacturer if possible."  This way, as I am on a lot of meds for my health conditions, it makes everything easier to keep track of.  Helps put it in their face a little bit, so ask them if they have something in their system that will show a note each time something is filled.

Lisa Mentor
Lisa
Posted

Another technique I use at my pharmacy is having them add a note to my file that pops up when the Pharmacist is verifying, that says "Please consult with patient before filling an existing RX with a new NDC.  Please keep same manufacturer if possible."  This way, as I am on a lot of meds for my health conditions, it makes everything easier to keep track of.  Helps put it in their face a little bit, so ask them if they have something in their system that will show a note each time something is filled.

Yes.  And I do think they can flag your account as gluten fee as well. I know my pharacist personally and she always verifies for me. It helps to know your people. :)

sunny2012 Rookie
sunny2012
Posted

You may need to educate your pharmacist about which brand or manufacture to purchase for you. Get the list of gluten-free meds and refuse to accept anything with gluten. THey can choose which to order for you.

StephanieL Enthusiast
StephanieL
Posted

You may need to educate your pharmacist about which brand or manufacture to purchase for you. Get the list of gluten-free meds and refuse to accept anything with gluten. THey can choose which to order for you.

 

They can only choose from the manufacturers they are able to get from the wholesale companies they order from. Not all pharmacies can order any med/brand offered. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


caro7 Newbie
caro7
Posted

If you google Sybtroid by AbbVie gluten free, you will find they do not guarantee it is gluten free. I do not know what part of the country you are in.  My husband goes to the VA in Minneapolis .  We find it very hard to talk to the Pharmasist , they are so busy.. I think you will have to discuss this with your pimary.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.