Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lost

biel45

Recommended Posts

biel45 Newbie
biel45
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


etbtbfs Rookie
etbtbfs
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

Keep in mind that what matters, is how you feel!  If getting off gluten makes you feel better, then that is what matters.

 

The doc should have done both gliadin antibody and tissue transglutaminase tests.   If not at least both of those tests were done, then whether you really qualify as celiac is not known.  You could well be just gluten intolerant; and it isn't unheard of to have an infectious disease (which stresses the body), stress you into gluten intolerance.

 

Keep in mind that the type of wheat grown in the U.S. (transgenic dwarf wheat) is quite a toxic substance, it has way more gluten than the wheat varieties grown 100 years ago.  I have a neighbor who says she can tolerate a modest intake of wheat while in Europe, but in the U.S., she has to be wheat & gluten free.  There is a lot of bad stuff going on in the food supply in the U.S., such as glyphosate and Bt toxin pollution from genetically-modified crops.  Be careful what you eat here.

 

BTW doctors in the U.S. tend to be lab-test happy, and many of them don't appreciate how expensive it is.  There are way too many docs here who depend on lab tests, rather than symptoms, to diagnose.  Some of them have to practice that way because insurance companies expect them to see a huge number of patients per day.

kareng Grand Master
kareng
Posted

Keep in mind that what matters, is how you feel!  If getting off gluten makes you feel better, then that is what matters.

 

The doc should have done both gliadin antibody and tissue transglutaminase tests.   If not at least both of those tests were done, then whether you really qualify as celiac is not known.  You could well be just gluten intolerant; and it isn't unheard of to have an infectious disease (which stresses the body), stress you into gluten intolerance.

 

Keep in mind that the type of wheat grown in the U.S. (transgenic dwarf wheat) is quite a toxic substance, it has way more gluten than the wheat varieties grown 100 years ago.  I have a neighbor who says she can tolerate a modest intake of wheat while in Europe, but in the U.S., she has to be wheat & gluten free.  There is a lot of bad stuff going on in the food supply in the U.S., such as glyphosate and Bt toxin pollution from genetically-modified crops.  Be careful what you eat here.

 

BTW doctors in the U.S. tend to be lab-test happy, and many of them don't appreciate how expensive it is.  There are way too many docs here who depend on lab tests, rather than symptoms, to diagnose.  Some of them have to practice that way because insurance companies expect them to see a huge number of patients per day.

Actually, that stuff about the USA dwarf wheat strain having more gluten isn't backed up by science. It still has the same amount. Some commercial baked goods will have extra gluten added.

kareng Grand Master
kareng
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

You could be sensitive to gluten but not Celiac - for several reasons. Is gluten free making any difference in how you feel?

nvsmom Community Regular
nvsmom
Posted

Welcome to the board, Biel45. I hope you feel better.  :)

biel45 Newbie
biel45
Posted
  • Author

Thank you all for the answers !

 

and yes , being gluten free really helped me. I remember the last time i ate a lot of gluten , it was when i ate a package of Oreo and a hot dog with honey mustard , i got VERY sick , i started having more bleeding and couldn't react to anything , i almost gave up of my exchange program in this day. In the other day , i talked to a friend in Brazil that is a doctor and he told me about celiac disease. After 2-3 days of being gluten free i really felt the difference, i had a lower level of gases and the bleeding almost stopped. Sometimes the bleeding come back again even when i am in a gluten free diet. I use the meal plan of the university where i study to eat, they have gluten free option , but even though i don't feel safe eating at the dinnings because the food is prepared in the same kitchen.

 

My last trial will be giving up of the dinning and start preparing my own food. If the symptoms don't go away , i will have to go back to my country because the price of exams here is too much for me. 

 

Also, the doctor told me that bleeding is not a celiac symptom and she wouldn't ask me for an endoscopy , but at the same time she couldn't explain my bleeding... 

 

Other symptoms that made me think that i was celiac : Headaches , fatigue, weight loss, hair loss ... I did all kinds of exams , including colonoscopy , and everything was pretty normal.

nvsmom Community Regular
nvsmom
Posted

Hemorrhoids are not unusual among celiacs and it can cause quite a bit of bleeding. Could that be it? They often accompany diarrhea or constipation and the bleeding can ast days or weeks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


biel45 Newbie
biel45
Posted
  • Author

I don't think so. I already did 2 rectal exams and the sigmoidoscopy and everything was fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    3. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    4. Dorothy O.
      - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Even though my brother almost died in his 40s because of coeliac disease, no one ever told family members that we should be tested. As a result, I was almost 70 years old when an orthopaedic doctor suggested that I be tested for coeliac disease. My count was greater than 250. I had loved my bread, baking, especially pies and was never sick, but did not absorb...
    5. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,402
    • Most Online (within 30 mins)
      7,748
    alanhlam
    Newest Member
    alanhlam
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.