Cbc Results Not Mentioned....

[Brit1612]

Sorry for asking more questions!  When I talked to the GI after our initial round of testing (for my 2 year old son), only the positive reducing substances and the high ttg igg were mentioned.  Was told there was no anemia or deficiencies.  But I went on to his "patient portal" and noticed that there were a few other numbers that were "out of the normal range" and this is AFTER being gluten free for about 5 months.

 

Here were the numbers I noticed:

 

Red blood cell : 3.86 (listed as low, but no range is given)
Mean Cell Volume: 87.4 (listed as high, but no range is given)

Hemoglobin: 11.4 (listed as "normal")

Calprotectin: 65 (did not say if it was normal, and no reference range was given)

 

I was curious if the first two numbers could possibly indicate that he had been anemic at one point?  Or is being out of normal on these test ok as long as the HGB is ok???  Thanks!

[Brit1612]

Also, I do understand that being gluten free has nothing to do with these numbers, but I was thinking IF he has celiac he could have been deficient and we didn't know it, which could have led to anemia.....

[cyclinglady]

Would be nice if his ferrtin levels were checked. Hemoglobin levels can go up and down with unstable iron stores (ferritin).

With a high TTG, he most likely does have celiac disease. I only had one positive DGP IGA that was positive. The rest of my tests were normal. Biopsy found severe damage.

Your case is strange. Keep us posted about the results for both of you! Do not give up until you are satisfied that your health and your child's is improving.

And finally, take care of yourself! Being anemic and or having celiac disease can cause anxiety. Heck, not enough oxygen to your brain can cause some pretty fuzzy thinking!

[Brit1612]

Cycling lady- Thanks for the feedback on ALL my questions!  On this board everyone seems to say "high ttg igg likely is celiac disease" but the doctors I have gone to don't really back that up.  They seem to think one unusual test alone doesn't mean much.  To me, there has to be some reason, celiac or something else, that would cause that result to be high.  (Not lab error because 2nd test it came back higher - even after being gluten free)  We are going this afternoon for the complete panel for the first time (while being back on gluten - just praying we get some results).

 

To be honest I feel fine.  Other than being worn out sometimes, but I have two little boys, so it seems pretty normal to me!

 

My little boy seems to be doing ok on gluten, actually better off than he was before we went gluten free, then returned to gluten.  It is so confusing.  He seems to be getting constipated here and there, with loose stools still in the mix.  But nothing to the extreme as he was for the almost year leading up to going gluten free.  Thanks again.  I will come back and update whenever we get the results to these blood test, hopefully sooner than later!

[cyclinglady]

Celiac disease symptoms can wax and wane which is infuriating! Case in point, my cousin told me yesterday that she got glutened outside her home and instead of her normal intestinal response, she got a migraine which she never gets!

The blood test results? Here is a site that explains it better than the technical government sites.

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i know you think you might be doing okay, but think of the oxygen masks on airplanes. You are always instructed to put yours on first before assiting others. We moms tend to overlook that advice in life!