Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Dh People


doc white

Recommended Posts

doc white Newbie

Hi Dh sufferers i want to try and help a many Dh people as i can. I have dh it's one of the worst things you can get. My arms were covered and legs, head I'd have to get shower 4 times a night it would drive me crazy I'd itch all day. I was on dapsone for a short time until my wife told me about coconut oil.i started with on heat spoonful for the first week, the second week two spoonful keep on tha until the blisters have gone. You still need to eat gluten free also my wife uses it for cooing to I have no blisters unless cross contamination. The coconut oil has to be Virgin unrefined the blisters will start disappearing in a few months it works for me and I hope it works for you all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Do you eat the coconut oil or put it on the lesions? I find it useful for dry skin and hair also when applied topically. 

Do you know you should limit iodine until your lesions are healed? Iodine can keep the antibodies active in the skin. I only had to drop iodized salt but others have had to limit high iodine foods also. I stopped getting lesions unless glutened within a couple months and within a couple years my lesions became just one or two tiny blisters when glutened. If your breakouts are still severe if you get CCd you may want to limit iodine for a bit. Do add it back in after your skin has calmed down as iodine is a needed nutrient. 

doc white Newbie

Sorry you eat the coconut oil you can have it of the spoon in drinks . I just have it of the spoon ps you can put it on the blisters as we'll

notme Experienced

i have been putting a spoonful in my hot tea in the mornings :)  trying to gain weight, but if it's helping the skin, then, win-winning!  i also use it in a salve i make with tea tree oil, also good for hair, lolz - i use it like the old lady on the frank's red hot commercial!  haha  :D

doc white Newbie

i have been putting a spoonful in my hot tea in the mornings :)  trying to gain weight, but if it's helping the skin, then, win-winning!  i also use it in a salve i make with tea tree oil, also good for hair, lolz - i use it like the old lady on the frank's red hot commercial!  haha  :D

if you want to gain the weight with coconut oil have it three times a day with a protein shake. Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    2. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    4. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,839
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.