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Gluten Free Diet

gore2828

By gore2828
in Coping with Celiac Disease

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gore2828 Newbie
gore2828
Posted

I am going gluten free for a month as a test. I have not been diagnosed with celiac but believe I have a gluten intolerance. For years I blamed it on IBS but I have no respite from it

Lately I have been eating more grains and noticed my symptoms worsen. As of today, I went gluten free. I deal with alot of digestive issues: bloating, diahorrea, constipation, and other stuff. I was under the impression I would start feeling better, digestively, right away. I went all day feeling good until the evening and I started getting bloated. How soon will this diet kick in? Am I rushing it? Could the bloating be residual irritation from the gluten ztill in my gut? Help. I just want to be better.

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psawyer Proficient
psawyer
Posted

If your issue is celiac disease, then going gluten-free begins the healing process. It can take a long time to reverse damage to the villi, and symptoms can persist. In my case it took several months gluten-free before I had no noticeable symptoms, but the damage to my villi was quite severe.

kareng Grand Master
kareng
Posted

Why not get tested for Celiac before you go gluten-free? That way you would know what you are dealing with.

And yes, less than 24 hours gluten free probably isn't enough time to treat Celiac or any other reason gluten might bother you.

gore2828 Newbie
gore2828
Posted
  • Author

I don't have health insurance. Figured I'd try it on a test basis.

nvsmom Community Regular
nvsmom
Posted

Before going gluten-free, you should know that if you want to get tested in the future, you will need to resume eating gluten (approximately 1-2 slices of bread per day) for the 2-3 months prior to testing.  It can be very difficult to make yourself sick for that long for the sake of testing, so if testing is at all a possibility, you may want to consider it.

 

It can take a very long time to feel better on the gluten-free diet.  Generally speaking, most celiacs will notice some difference within the first week gluten-free but symptoms usually don't resolve for a few months, or for many many months.  My autoantibodies were still measurably high after being gluten-free for 9 months, so that means my intestines were still being attacked and I still had inflammation.  I felt better than I had while eating gluten, but my symptoms continued to improve until I had been gluten-free for about a year and a half.  Bloating and stomach aches after every meal changed first (although it still happens once in a while), then headaches improved. At 9 months in my constipation finally left, and at 1 year gluten-free my arthritis was improving.  It can take a long time.

 

Those with Non-celiac gluten sesnitivity (NCGS) tend to improve a bit faster than celiacs (from what I have seen) but that is not always the case.

 

Best wishes to you.  i hope you feel better.

bartfull Rising Star
bartfull
Posted

You'll have to (probably) go through gluten withdrawal first. Headaches, mood swings, unsatiable hunger. It lasted a couple of weeks for me. Then at about three weeks I started feeling better and noticed my celiac symptoms lessening.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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