Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Other Labs Should Be Checked?


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

Once celiac is diagnosed, what other labs should be checked?  I assume we should check for anemia, vit D... what else?  I have zero confidence in our GI doc and want to be on top of things.  All of the follow up we have been told to do is a weight check in 3 months for our 4 year old and a follow up appointment in 6 months with GI to check celiac labs again.

 

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Good ones to check are D, B12, folate, A, Mg, Ca, Fe, ferritin, K, Zn, and Cu.  Remember supplements may not be absorbed well until healing is underway (often after 6 months gluten-free) so discus large doses or injections with the Dr, until numbers really improve.

 

A bone density scan is a good idea, especially if Ca is low.

 

It`s also a good idea to double check for thyroiditis (hypothyroidism), and recheck it in the future if any symptoms of hypothyroidism appear.  Check:

  • TSH - should be near a 1 regardless of the range
  • Free T4 and Free T3 - Should be in the 50-75% range of the lab`s normal range.  One can be hypo even if your results (especially of FT3) are in the lower half of normal.  Do not mistake these labs for T4, T3, total T4, or total T3 - they won`t give you as accurate a picture.
  • TPO Ab - Should be fairly low.  You can have thyroid problems without this being elevated (my thyroid barely works but TPo Ab has always been within normal for me)

Diabetes type 1 is another co-occurring disease that exists most frequently with celiac disease.  It can appear in adulthood so if you have insulin issues, keep an eye on that.

 

That`s all I can think of.  Good luck!

Fenrir Community Regular

There should be a comprehensive metabolic panel that is ordered. It should cover all the micronutrients, vitamins and minerals. Thyroid and liver testing as well, because Celiac can do a number on both sometimes. My Liver enzymes were elevated before I went gluten free. Also, people can get anemic as well so a CBC should be ordered. 

 

If anything comes back abnormal they should be monitored and possible nutrition supplementation could be ordered. My Vitamin D was about 5 before going gluten free so I have been taking a pretty high dose of that. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.