Need Info!

[AlanMM]

I had a colonoscopy done and my doctor said that my small bowel or bowels looked normal but the biopsy came back as being borderline for Celiac! Had a blood test done today to double check! I have never in my 51 years of life had any symptoms that would make someone think that I had it, matter of fact don't even know what are symptoms for this disease. Is the blood test what will tell me that I infect have this disease?

Don't know of anyone in my family as have Celiac.

Have just been diagnose with an Ascending Aorta aneurysm is that a side affect?

 

Thanks for any input as I'm clueless!

 

Alan

[cyclinglady]

Welcome!

Here is a good and reputable place to start:

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There are over 300 symptoms of celiac disease. Some folks do not experience ANY symptoms! I was the first to be diagnosed in my family.

I would recommend a complete celiac blood test panel which includes:

-tTG IgA and tTG IgG

-DGP IgA and DGP IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replaced by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

You had a colonoscopy (for the over-fifty club!), like me. celiac disease is usually captured in an endoscopy (other end). I guess your doc made it all the way up to the small intestine! My only symptom was anemia and later osteoporosis. I was shocked during my GI consult when he suggested I had celiac disease. My blood test was positive and I was scoped from both ends!

The anerysm? Affects smokers, those with high blood pressure, etc. Runs in families, I do not think it is related to celiac disease. I just had mine checked. I am thin, so docs kept feeling it (me too). My Dad had an AA and had surgery 20 years ago and is doing well.

More questions? Let us know!

[nvsmom]

Welcome to the board.

 

Ditto everything Cyclinglady said.  Make sure you do NOT go gluten-free before all testing is done or it could affect your results and cause false negative results.

 

Celiac disease tends to run in families with autoimmune diseases like hypothyroidism (look for thinned hair, overweight, dry skinned), type 1 diabetes, rheumatoid arthritis, lupus, among others.  If you know of any of that, then you are at risk of an autoimmune disease like celiac disease too.

 

Good luck to you.  Read the links posted above, I'll add another here: Open Original Shared Link I hope you find answers.

[cristiana]

Hi Alan

 

This is one of my favourite resources, it is written for doctors in the UK, so don't be put off the European spelling of Coeliacl.

 

I had migraines and a few other minor issues that I just thought were normal for me until I went on the gluten-free diet and they started disappearing.  It is a bit like putting  a jigsaw puzzle together which begins to make sense once the final pieces i.e. confirmed diagnosis and then the adoption of a gluten free diet are put in place.  

 

All the best

 

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