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Success Stories Needed Desperately!

ssb85

By ssb85
in Related Issues & Disorders

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ssb85 Newbie
ssb85
Posted

I've had coeliac disease for 5 years now.  I'm 100% gluten free apart from the occasional accidental poisioning I sometimes get at restuarants.

 

I've had two chemical pregnancies so far, 1 unplanned in 2014 and one planned this past month.  My husband and I are trying to conceive.  I can get pregnant anytime I try, but within 1-2 weeks they disappear. 

 

I'm seeing a specialist next week who reckons the auto-immune disease is forcing my body to kill of anything new that enters it... hence the recurrent failed pregnancies.  I'm getting tests to confirm his suspicions, but he said there s treatment like a concoction of aspirin/heparin and IVGi's etc etc.  I already take prescribed folic and prenatal vitamins etc.

 

My question is... has anybody experienced this and have gone on to have successful pregnancies with or without the help of this medication?

 

As I've only started trying for real, I'm very anxious that this journey is going to be one of heartache, so please share any success stories if you can! 

thank you in advanced

 

Louise

xx

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notme Experienced
notme
Posted

my celiac gene must have turned 'on' when i was (or soon after) pregnant with my first baby.  of course, i didn't know i had it.  i had a miscarriage very early on (very wierd, because baby's cells kept multiplying, just not enough (?) )  anyway, i had to have a d&c with that one and doctors said i might have problems with any subsequent pregnancies.  but, nope, my second baby was a normal pregnancy and birth, with absolutely no complications.  :)  

 

good luck & welcome to the forum.  ((((hugs)))) 

  • 2 years later...
Lyss Newbie
Lyss
Posted

You have to be completely grain-free if you have celiac/hypothyroidism/hashimotos. I was pregnant with these "diseases" a year ago and completely cured it by going grain-free. I now have a healthy 10 month old who is perfect and reaching all of his milestones. It's possible. Hang in there!

cyclinglady Grand Master
cyclinglady
Posted
18 minutes ago, Lyss said:

You have to be completely grain-free if you have celiac/hypothyroidism/hashimotos. I was pregnant with these "diseases" a year ago and completely cured it by going grain-free. I now have a healthy 10 month old who is perfect and reaching all of his milestones. It's possible. Hang in there!

Welcome to the forum.  I assume that you mean that you are controlling your Hashimoto's and celiac disease with a gluten free and/or grain free diet.  There is no cure for any autoimmune disease.  Decreased antibodies indicates that the disease is not active, but not cured.  

Congrats on having a healthy baby!  Enjoy him.  

Lyss Newbie
Lyss
Posted
1 minute ago, cyclinglady said:

Welcome to the forum.  I assume that you mean that you are controlling your Hashimoto's and celiac disease with a gluten free and/or grain free diet.  There is no cure for any autoimmune disease.  Decreased antibodies indicates that the disease is not active, but not cured.  

Congrats on having a healthy baby!  Enjoy him.  

Thank you! What I really mean to say is that the way our food is sprayed, processed, and prepared wreaks havoc  on our bodies and thyroids. I don't believe it's a disease but our diseased food that's making us sick (some people are more vulnerable to it for various reasons). I no longer have antibodies and my thyroid numbers are normal range. So yes, it is managed.

Posterboy Mentor
Posterboy
Posted

ssb85 desperately needed success stories, (don't we all)

I realize the OP may not be following this thread now but in the hope it might help others that read this thread that ssb5 or other pregnant ladies or those looking to get pregnant might want to have their thyroids checked.

a  poor performing thyroid can lead to a miscarriage.  I had a friend who's sister this  happened too!

Obviously they were devastated.

Here is an online article from the verywell website that talks about the association of thyroid problems and recurrent miscarriages.

Open Original Shared Link

Also their is new research/study this week out of Australia  that links low Vitamin B3 levels and supplementation that might can help some pregnant mothers possibly prevent miscarriages.

Open Original Shared Link

It is really groundbreaking research akin to when they learned Folic Acid helps reduce neural tube defects ie, (spina bidia) and rates dropped 30+ percent in the year after fortification become mandatory in the US.

Open Original Shared Link

quoting from the article

Open Original Shared Link

"Vitamin B3 -- found in meat and green vegetables -- has been shown to prevent one genetic cause of birth defects and miscarriages, according to a new study. . .


"Not only have we identified a cause of miscarriage, and of birth defects where the babies affected have heart and vertebral and kidney defects among others, but we've also discovered a prevention in the form of niacin, also known as vitamin B3," said Sally Dunwoodie, lead author of the study and a researcher at Sydney's Victor Chang Cardiac Research Institute.

Based on the findings, Dunwoodie suggests that pregnant women should take high doses of vitamin B3, also known as niacin, to prevent miscarriages and certain types of birth defects. . . .

Dunwoodie and her colleagues based their research on a New Jersey Medical School study that found at least a third of pregnant women have low levels of vitamin B3 during the first trimester, when a baby's organ development begins. The research also discovered that vitamin B3 levels were low in 60% of women by the third trimester."

It is me again.  As always consult your doctor before using or taking high doses of anything (Vitamin or otherwise) when pregnant.

But since  it is already know B-Vitamins help Celiac's.

research indicating select B-Vitamins like b-6, folic acid and b-12 helps celiac's to control their homocysteine levels a marker of heart stress/inflammation.

Open Original Shared Link

I can personally vouch for how folic acid helps my blood pressure.

it would stand to reason adding Vitamin B-3 to your regimen in say the way of B-Complex might help too!

And why most prenatal's already have B-vitamins in them they are in a much lower amount than studied in this research. And you might not need the higher doses studied but like in the results for folic acid (spina bifida) maybe a smaller more frequent amount might do as well.  Don't most people eat 3 times/daily.

B-Vitamins due to  their water soluble nature should be taken with each meal or twice a day for best effect.  And they note in their research the latter in the pregnancy the lower one becomes in Vitamin B-3 reflecting an increased need in pregnancy indicating that only taking B-Vitamins (prenatal's) once a day might not be frequent enough to help with a deficiency when pregnant.

This presumable is in person's already taking a prenatal and yet their deficient status increased with time and the stress of pregnancy.

We all know the adage "eating for two" it is an adage "cliche" because their is truth in it.

***this is not medical advice but it seems to be promising  and timely research for those looking to conceive and might still be having trouble doing so.

I hope it helps the next reader of this post.

the more you know . . . the better prepared you are.

good luck on your continued journey.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

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