Now Does This Make Any Sense?

[danikali]

Okay, don't get me wrong, I am happy that I haven't been feeling like complete crap these past few days, but it's really weird. I've been eating A LOT of gluten lately, and I only have little symptoms that come and go, and the big ones are not as bad anymore.

I was off gluten (well low gluten) for a few months, and then, I would feel amazing but then get completely HORRIBLY SICK out of nowhere!!!!! (Bad body aches, bad migrane, bad back aches, bad leg cramps, etc.) So anyway, for the past few weeks I decided to go on a COMPLETE gluten diet (for upcoming blood tests), gluten with every single meal! And even though I still have alternating constipation and diarreaha, and slight head aches, and slight leg cramps, and black and blue marks all over my legs, my back pains have mysteriously gone away!

So is it possible that my body has started to build up a "tolerance" to all of this? I mean, when I was on the low gluten diet, I would be fine for weeks and the BAM!!!!!!!!! Out of nowhere, my body would be stuggling to do ANYTHING!

Anyway, if anyone knows what may be going on.......... I don't know if this is possible, or if my body is playing tricks on me, or if I am miraculously on a road back to health....? It's like, I CAN EAT GLUTEN, I CAN'T EAT GLUTEN, YES I CAN, NO I CAN'T..............I really seem crazy!

[Katydid]

<_<I had to reply to your post because I know exactly what you mean. My husband is the celiac in our family and he was diagnosed about 15 years ago, after having symptoms get progressively worse over about a 12 year period.

In the beginning, the first thing that bothered him was beer and pizza (a double whammy) But then a month later he would have a beer and pizza and get along fine.

To me, logic says it should bother you all the time, not just once in a while.

As my husband's undiagnozed celiac continued, he would cycle. When he first consulted a doctor about his symptoms, he would say "It just seems like I get the flu about every 6 weeks" Then as time progressed, it was every 4 weeks, then every 2 weeks, and finally - sick all the time. It wasn't until he was sick all the time that he finally got in his doctor's face and said "Look, there is something wrong with me, either find it or send me to someone who can". Thus the beginning of tests which finally led to celiac disease diagnosis after 12 years of suffering.

That is why this disease was so insideous for him. He would eat pancakes one day and get sick, and then eat them another day and be fine.

I don't know if this cycling was commonplace with other celiacs, but it certainly was for him.

Kay

Okay, don't get me wrong, I am happy that I haven't been feeling like complete crap these past few days, but it's really weird. I've been eating A LOT of gluten lately, and I only have little symptoms that come and go, and the big ones are not as bad anymore.

I was off gluten (well low gluten) for a few months, and then, I would feel amazing but then get completely HORRIBLY SICK out of nowhere!!!!! (Bad body aches, bad migrane, bad back aches, bad leg cramps, etc.) So anyway, for the past few weeks I decided to go on a COMPLETE gluten diet (for upcoming blood tests), gluten with every single meal! And even though I still have alternating constipation and diarreaha, and slight head aches, and slight leg cramps, and black and blue marks all over my legs, my back pains have mysteriously gone away!

So is it possible that my body has started to build up a "tolerance" to all of this? I mean, when I was on the low gluten diet, I would be fine for weeks and the BAM!!!!!!!!!  Out of nowhere, my body would be stuggling to do ANYTHING!

Anyway, if anyone knows what may be going on.......... I don't know if this is possible, or if my body is playing tricks on me, or if I am miraculously on a road back to health....? It's like, I CAN EAT GLUTEN, I CAN'T EAT GLUTEN, YES I CAN, NO I CAN'T..............I really seem crazy!

<{POST_SNAPBACK}>

[danikali]

Thank you so much! YES, that is exactly how I feel! Like I get the flu every 6 weeks or so! I mean, there are always little things, but it completely plays tricks on me!

The only thing is I'm wondering if the doctors will only be able to get a positive diagnosis by getting to the point of being sick all of the time! I'm going for my blood tests on Wednesday, (actually the doctor doesn't even know why I'm going there yet, it's a new GI), and I'm going to tell her I want the full Celiac Panel done.

But it's good to know that I still am on the right track, even if it seems like it's not always there. So thank you very much!

-Danielle

[Rachel--24]

Your symptoms probably wouldnt be exactly the same everytime you eat gluten. Also sometimes reactions may occur quickly and other times reactions may show up a day or two later. Thats what happens with me anyways.

I never noticed any kind of pattern with my illness when I was eating gluten everyday. Somedays I could eat things and not be affected and another day I could eat the same thing and have immediate symptoms and end up in tears. It took me 2 years to even figure out my symptoms were food related and that was only because a dentist told me so. I tried messing around with my diet and couldnt figure anything out. I was losing lots of weight and decided to not mess around with my diet and let the doctors figure things out. I had no idea about gluten. I was eating tons of gluten trying to regain my weight but I only lost more and about 3 months later I was unable to get out of bed and had depression so bad I was suicidal...I felt about 90 yrs. old and I still had no idea about gluten. I think if symptoms were always obvious it wouldn't be such a hard disease to diagnose. Eventually it will take a toll on your body even if you're not feeling symptoms everytime you eat gluten.

[danikali]

Thanks! This is really good to know because this past Saturday, I had tons of energy all of a sudden, and no pains at all, yet I ate gluten all day long! Sunday came and I got really bad leg cramps, but now today, I am fine again! A little tired, lost the energy from Sat. but I don't feel sick at all!

Anyway, I'm glad to know this. My finace was like, hey, maybe you can eat anything you want!!!!! And I was like, hmmm......maybe I can??