Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Dh In Child? Not Really Itchy...

SiandAshs Mom

Recommended Posts

SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

That looks exactly like my son's DH, especially those little craters where he has scratched off the tops. 

 

I know exactly the frustation of trying to figure out what's going on. What we did, was take our son off gluten to see if the tummy aches would get better. Tummy aches stopped immediately and the rash started healing. That was great information and it gave me something to go with when I went to the doctor. The trouble with that was we had to get him back on gluten for a full 12 weeks before we could do any testing. So most people would tell you for that reason, to not go off gluten at all until you a diagnosis. 

Thanks - it's nice to know I'm not way off track! Lol! We have never put him on a gluten-free diet so I'll probably try to get a biopsy before we eliminate it. A 12 week challenge would suck! I appreciate your input :)

  • 3 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SiandAshs Mom Apprentice
SiandAshs Mom
Posted
  • Author

Open Original Shared Link

 

Just an update - we have had my son on a low iodine diet and his rash seems to be clearing up. It's difficult to know what's what as his rash seems to flare up and then improve on its own for no apparent reason. It never seems to fully go away though (except when he was on prednisone). We'll get him back on iodine and see what happens!

bluewhitesky Rookie
bluewhitesky
Posted

Open Original Shared Link

 

Just an update - we have had my son on a low iodine diet and his rash seems to be clearing up. It's difficult to know what's what as his rash seems to flare up and then improve on its own for no apparent reason. It never seems to fully go away though (except when he was on prednisone). We'll get him back on iodine and see what happens!

Wow...what an improvement!

 

And I hear you on finding it difficult because the rash flares up and improves for no apparent reason sometimes. That drives me crazy! 

 

Keep us posted if anything happens after adding iodine back. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this!
    2. RMJ
      - RMJ replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result.
    3. kpf
      - kpf posted a topic in Introduce Yourself / Share Stuff
      0

      Vegetarians and vegans with celiac disease

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else?
    4. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their...
    5. Trish G
      - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,335
    • Most Online (within 30 mins)
      7,748
    Kathleen Groner
    Newest Member
    Kathleen Groner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.