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- Mari replied to Jmartes71's topic in Coping with Celiac Disease1Second chance
Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties... -
- cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease119 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also... -
- trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease119 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Yes, that is the suggestion. -
- Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease119 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Anyway, I have no problem with grass fed milk other than the price. Maybe I should move to Ireland or New Zealand. They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week. A year ago I had over ... -
- dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease119 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Thank you all. Regarding dairy products: I think we are getting to the point that we are ready to try anything, but of course hesitant to cut this out entirely too as he's still a 9 year old and adjusting to a diet missing other foods he's used to. We have already kept him from milk (which he loves) to not overdo the dairy, but complete elimination will...
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Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free. -
Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea. In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning. That was helpful. If your son is supplementing (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore. Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating. Patterns start to emerge which might otherwise be difficult to identify.
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Yes, that is the suggestion.
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By Wheatwacked · Posted
Anyway, I have no problem with grass fed milk other than the price. Maybe I should move to Ireland or New Zealand. They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week. A year ago I had over 90% stenosis in the right artery and 80% in the left. Tcar procedure done in the right with a stent. The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right. Recheck in six months. Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk. I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein. Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory. -
Thank you all. Regarding dairy products: I think we are getting to the point that we are ready to try anything, but of course hesitant to cut this out entirely too as he's still a 9 year old and adjusting to a diet missing other foods he's used to. We have already kept him from milk (which he loves) to not overdo the dairy, but complete elimination will be tough. I have heard that the milk/casein association has more to do with its effects on an already damaged gut, such that it is more of a problem when healing and not long term: is the idea/suggestion proposed here that casein is triggering the same immune reaction as gluten would (which is a different matter)?
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