Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

17 With Celiac


Guest hockeybabe

Recommended Posts

Vyse Newbie

this thread is a bit old, but i thought id throw in my 2 cents for the heck of it.

Im currently 18, ive been gluten-free for nearly 3 years. it was rough at first, but my friends were pretty supportive, even though they forget sometimes to this day. i have had people mess with me jokingly, but going through most of my high school career without wheat has openned some peoples eyes. Maybe people in my hs didnt really pay much mind. Then again i am quiet and 6"3', so maybe i was a little scary to those that didnt get to know me. then again i never had drama with anyone either, with the whole not talking much thing.

Either way, i know how you feel. I have even sat in pizza hut numerous times just to spend time with my friends, and my friends have eaten pizza in front of me too many times to count, not maliciously of course its just that they dont understand. And i forgive them for that because im their friends and they're mine. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

You guys are very fortunate to know you have celiac disease at 17. I didn't find out until I was 36. Basically this disease caused me to waste the first 36 years of my life. High school was the worst 3 years of my life. Even at 37 there are people who will try to tempt me into eating gluten laden foods. Keep taking care of yourselves, its worth it in the long run.

Ianm

  • 1 month later...
kings-kid Newbie

I am 18 years old. I was diagnosed when I was in grade 7, but was in denial about through most of highschool, and even some now. I try and stick to the diet, but sometime I just slip up and cheat.. especially if there is Pizzs or lassania in the house.

celiac3270 Collaborator

I bet you've heard this before, but you can't do that to your body! :o Being partially gluten-free is no good--you need to be 100% gluten-free 100% of the time for your body to heal--and if you're not, there's a severely elevated chance of osteoporosis, type 1 diabetes, and cancers, as well as a severe decline in estimated life expectancy. Yea, it's a pain in the neck at first and it does require you to think about eating in a new way, but it gets easier after awhile and it's for the good of your body. Even if you don't feel anything when you eat gluten, your intestines are still being destroyed. I don't know if this will have an effect--probably won't--but at least I tried :rolleyes:

  • 3 months later...
sweetiegrl109 Newbie

hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

KaitiUSA Enthusiast
hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

<{POST_SNAPBACK}>

What you can do is just bring your own drink along. Nobody will care. I have had to bring my drinks pretty much everywhere I go and people don't even ask questions. They don't need an explanation to why you brought it along either.

However, if you are talking alcoholic beverages then its probably a good thing you can't have the drinks they have there.

You don't cheat on the diet do you? That can cause those days you are talking about of just not feeling well.

I know some people can really get to you with the comments they make as jokes...it bothered me for a while but doesn't anymore. If someone says something then you can ignore it or come back with a joke back on them.

It also used to bother me to sit with people while they ate my pre gluten-free favorite foods...now I don't even crave it so they are welcome to all the crap food they want and if its in front of me it's cool.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

    2. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    3. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,909
    • Most Online (within 30 mins)
      7,748

    probinson3870
    Newest Member
    probinson3870
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.