Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until I See Positive Results?


ahron1988

Recommended Posts

ahron1988 Newbie

Hello Everyone,

 

I'm non-celiac, self diagnosed gluten-intolerant. 

 

I'm 27 years old and for the past several years Iv'e been suffering of chronic fatigue, brain fog, inability to concentrate some depression. 

 

3 weeks ago I decided to experiment a gluten-free diet to see if this will alleviate my symptoms. 

 

In week 1 I got very excited because I did feel significantly better. But in weeks 2 and 3 I felt that I'm going backwards, as the symptoms were coming back. I would just add that in weeks 2 and 3 there were 2-3 days where I DID feel good, but overall I didn't feel like I'm making real progress.

 

So, my question to you is, should I continue with this diet? Did anyone have a similar experience?

 

Thanks for you responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hello Everyone,

 

I'm non-celiac, self diagnosed gluten-intolerant. 

 

I'm 27 years old and for the past several years Iv'e been suffering of chronic fatigue, brain fog, inability to concentrate some depression. 

 

3 weeks ago I decided to experiment a gluten-free diet to see if this will alleviate my symptoms. 

 

In week 1 I got very excited because I did feel significantly better. But in weeks 2 and 3 I felt that I'm going backwards, as the symptoms were coming back. I would just add that in weeks 2 and 3 there were 2-3 days where I DID feel good, but overall I didn't feel like I'm making real progress.

 

So, my question to you is, should I continue with this diet? Did anyone have a similar experience?

 

Thanks for you responses.

Just curious.....how do you know you are not a Celiac?

ahron1988 Newbie

Just curious.....how do you know you are not a Celiac?

Hi Kareng,

 

Thanks for your response.

 

I was recently by my doctor and he did extensive blood work. He didn't find any reason to believe that I'm Celiac.

 

Do you think I should do any further testing? 

bartfull Rising Star

Can you get copies of the tests he did and post them here? A lot of doctors don't know enough about celiac to do the full panel.

 

But to answer your first question, a lot of us had that wonderful "grace period" where we started to feel great, then backslid. It takes a long time to heal.

  • 2 weeks later...
ch88 Collaborator

There are other types of food allergies and sensitivities that can effect the brain besides gluten. One idea is to limit your diet to a few very basic foods for a few days and see if anything changes.  Wheat, corn, soy, eggs, dairy are some common problem foods for some people.

Seifer Rookie

Yeah it can takes months and even years if you've been on large amounts of gluten all your life (gluten basically works like a drug on your brain), also you have to make other dietary changes aswell to improve overall health. 

msh-anth Newbie

Hi, Just to say I'm in the same boat. Sorry to hear your not feeling great.

 

I had a lot of blood work done. Negative to the Celiac test. But stopping gluten made me feel great. Before it slowly started to come back but not as intense. It does seem to be other foods that trigger it. So I'm on a very restricted diet at the moment and I'm off to see a dietitian soon. I find that I react pretty quickly after 30 minutes or so. so I can tell pretty quickly if something is reacting. I'm hoping that it will slowly start to get better. but, not sure if there is anything to heal as a NCGS.

 

Dont give up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,597
    • Most Online (within 30 mins)
      7,748

    JosiePosey
    Newest Member
    JosiePosey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.