Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Gluten Reaction And Weird Vision Issues?


miles wales

Recommended Posts

miles wales Newbie

     So about 2 years ago my twin daughters (non genetic) were diagnosed with Celiac disease. I thought that it would be a lot easier if I went gluten free along with them to avoid cross contamination and just because it made me feel like I had a more active roll in the whole thing. A lot of stuff has changed for me over time that I think might indicate that I have some sort of gluten sensitivity so I thought I would run it by you guys to see what you thought.

 

     First off the changes have not been huge. Some of it is hard to quantify and might be related to other stuff. For example I seem to get colds a lot less and for a shorter duration. Also my depression seems to have decreased and I have less stomach issues and less joint pain. One clear change is my eyes have changed color. It's as if the brown part you saw before turned transparent to reveal a grey/hazel color.
 
     ....and then this happened....Yesterday I ate some potatoes that were cooked in the same dish as a (gluten containing) tofurky. Later that night I went out in the dark and there was a big white spot in the vision of my right eye. It was like I had been looking at a bright light but it didn't really go away. I also felt a little sick. this morning I woke up and felt very sick and my vision has been cloudy all day. this afternoon I was feeling much better and when I went out in the sun I saw quite a few "floaters" in my eyes. 
 
     So I guess what I would like to know is if any of this means anything. (I haven't heard a lot about gluten's effects on the eyes) or if it is more likely psychosomatic or related to just not eating gluten for so long. 
thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

miles wales Newbie

That sounds a bit like a migraine which can be related to Celiac disease. So, your Celiac tests were negative when the kids were diagnosed? Its possible you have developed Celiac since then, however, the only way to know would be to eat gluten for an extended time and get tested.

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac. 

kareng Grand Master

Thanks for the response! The migraine thing never crossed my mind. Also I was I never was tested for Celiac.

That's too bad. They are supposed to test all first degree relatives.

miles wales Newbie

That's too bad. They are supposed to test all first degree relatives.

Sorry if i was not clear. We are not genetically related. 

kareng Grand Master

Sorry if i was not clear. We are not genetically related.

Didn't notice that! Lol

It's still possible you have Celiac disease, too

miles wales Newbie

Didn't notice that! Lol

It's still possible you have Celiac disease, too

Thanks. You may be right. My main reason for posting is just because I am curious if there is a link between celiac and vision issues. Also the eye color thing is weird.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles wales Newbie

oops. I should also mention I have Been working outside in hot weather so that could be the cause.

RMJ Mentor

A sudden increase in floaters can indicate an eye problem, I would see an eye doctor.

ravenwoodglass Mentor

My eyes also changed color. They went from a dark brown, to a startling light brown and then very soon after that to a green hazel. I have no idea if that is related at all to celiac although I was a young celiac at the time. However you should see an eye doctor to be on the safe side. There are times when changes in eye colour can be significant and an indication of a serious issue. Excess copper in somweones system is one example that comes to mind.

As far as the floaters go I used to get them constantly before diagnosis and haven't even had one now in years. I also get blurred vision when glutened.

mgrant7209 Newbie

OMG! I didn't know anyone else had eye issues with celiac. My vision becomes really weird. The images become like a kalidescope - the colors stay what they really are, but the images break up into angular pieces that move around exactly like a kalidescope. Or, any lines actually in the image change direction: horizontal lines become vertical, and vertical lines become horizontal. My doctor suggested migraines, but I just don't think they are. I don't really even have pain with them. These events last anywhere from 1 minute to hours.

Akealey Newbie

You need to see an eye Dr. to rule out anything serious! This could be anything from an ocular migraine to retinal detachment. I don't wish to alarm you but just to urge you to check this out. You want to keep those peepers healthy and strong!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.